parentsofdis   10 #1 Posted October 11, 2009 (edited) Hello, Thanks for taking the time to read my post. My name is Daniel and i am a father of a 2 year old disabled boy. My son has a very rare genetic disorder called Cystinosis and it was a very hard time just after diagnosis dealing with it.  However we adopted an attitude that the condition would not defeat us and we would do all we could to help others.  We have set up a forum which is 100% non profit and we do it because we really want to help people.  The forum can be found at www.parentsofdisabledchildren.co.uk  On the forum its general discussion and advice such as benefit advice and healthcare issues.  I really hope some of you will come over and say hello and join in as we really hope you can get some help from others and also that you can help other's that may need it.  Thanks so much for reading.  Kind regards  Daniel Edited October 11, 2009 by parentsofdis Share this post Link to post Share on other sites Share this content via...
rachel2024 Â Â 10 #2 Posted October 11, 2009 Good luck with your website - wishing you all the best. Share this post Link to post Share on other sites Share this content via...