scott281178 Posted October 6, 2006 Share Posted October 6, 2006 Does anyone know anything about Rett Syndrome please? I have looked around the net and found some useful sites but I am wanting to know more about on progression and symptoms. My daughters peadeatrician hinted that she may have this and I'm worrying myself sick now! It would be helpful to talk to someone who already knew about Rett Syndrome. Any help much appreciated! Link to comment Share on other sites More sharing options...
scoop Posted October 6, 2006 Share Posted October 6, 2006 Have you tried a website called contact a family. They have information about most conditions and also can help you to find support groups etc. Link to comment Share on other sites More sharing options...
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