pAULSASH 10 #1 Posted February 13, 2019 🤗 Recognising fybromyalgia and not judging. The pain is bad enough but then people don't believe it's real. Well believe me it's real. We need more research into it. X Share this post Link to post Share on other sites Share this content via...
gene 10 #2 Posted February 19, 2019 (edited) http://www.sheffieldmegroup.co.uk/ Edited February 19, 2019 by gene Share this post Link to post Share on other sites Share this content via...
gene 10 #3 Posted May 3, 2019 #MillionsMissing is a global campaign for ME health equality. Sheffield ME and Fibromyalgia Group are hosting this event and will be visible on the steps outside the City Hall with speakers, music, performers, shoes, stories, poems and more. Help us be seen and heard by joining our Visibility Action in Sheffield! #CanYouSeeMEnow #CanYouHearME 12pm: Speakers and performers If you can only come from a short while, 12pm is the time to join us! 10am til 4pm: People with ME and Fibro, friends, family, allies and other groups from the region will be there welcoming everyone, giving out leaflets and information and raising awareness. https://www.sheffieldmegroup.co.uk/events Share this post Link to post Share on other sites Share this content via...
pAULSASH 10 #4 Posted March 8, 2021 Has anyone seen a specialist with fybromyalgia at any of Sheffield Hospitals Share this post Link to post Share on other sites Share this content via...
gene 10 #5 Posted March 8, 2021 (edited) Not in recent years - diagnosed in 1997 after 12 yrs of not knowing what it was other than I KNEW it was not arthritis. I then insisted I saw a rheumatologist as there was not a lot of help at that time. Paced/graded excercises made things worse with a heartless physio who said she would get me moving again. They no longer do that thank goodness as it makes things worse. I did attend the Pain Clinic but that is limited on what can help and how often you can have treatment. Luckily more people are aware of FMS now. Best advice is learn all about it, get to know your own body and how it works against you then manage it as best you can. Know your limitations and 'listen' to your body. . If you ever need a physio then use one that understands FMS as they know how not to trigger more pain. I used this clinic - https://www.roundwoodclinic.co.uk/physiotherapy/ and Claire but I am not sure she is still there. I also use a tens machine but do be aware not to place the pads on any trigger or tender points. Hot baths work best for me with a lightweight towel across my shoulders and someone pouring jugs of hot water over me. Edited March 8, 2021 by gene Share this post Link to post Share on other sites Share this content via...
gene 10 #6 Posted March 8, 2021 Long Covid and Chronic fatigue - Share this post Link to post Share on other sites Share this content via...
