Little Lillies Wish to Walk - Help raise £50k for surgery

[leecoddi 10]

Hi could you all please take time to have a quick look at my link .

Lillie is a very special little girl who we are fundraising for and need to get as many people as we can involved , we are asking for either donations or prizes so we could hold a charity auction night in aid of lillie and her wish to walk .

If there is any of you out there that feel you are able to help then please feel free to message me for more info , Thanks x http://www.justgiving.com/lillies-wish-to-walk

[DaveGas 10]

Sheffield Forum fishing group will be having a charity fishing match next year with all donations going towards this very needy cause.

 

Good luck and best wishes

 

Dave.

[DaveGas 10]

Anyone who fancys a days fishing or wants a fun day with your kids keep an eye on the fishing section for the charity match, its always been a good laugh and friendly day out when we go, we dont take it to serious and everyone enjoys it.

 

Its all about Lillie and making her wish come true.

[maccapacca 10]

The procedure mentioned is available on the NHS.

 

 

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[DaveGas 10]

The procedure mentioned is available on the NHS.

 

 

Posted from Sheffieldforum.co.uk App for Android

 

Then please get in touch with Lillies mother and help her work it out with the NHS im sure both Lillie and her mum would be very greatful!!

[leecoddi 10]

Mccapacca do you know what you are talking about or know more than the specialist that treat Lillie ? if so then please let us and all the other childrens parents know what you know so we can help them all. please feel free to message me and share what you do know about this operation and how we could get the good old NHS to give it her .

[maccapacca 10]

Sorry for the short unhelpful post. Ive sent you a PM.

[KeighlyM 10]

The NHS will not provide the procedure on Lillie she has quadriplegia CP and NHS don't do it on children with type. Also the children that do have in in england it is not funded by NHS the families still have to fundraise to pay for it.

[maccapacca 10]

The SCOPE website suggests that some of this surgery is performed on the NHS with Leeds and Nottingham being centres for it. The NICE guidance 2010 appears to recommend it in older children.

 

It seems quite unfair for this not to be available on the NHS if the neurologists are recommending it. Good luck raising the cash.

 

 

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[poppins 10]

Too bad this family isn,t from a 3rd world country , everything for this child would be done free in the USA

[KeighlyM 10]

Thank you. Yes the NICE guidelines do suggest it for older children. in england they do not even start the referral until the child is 4. This process at times can take up to 2 years meanwhile the child has already got deformities of the feet and as gone through numerous surgeries that could have been avoided by early SDR. A petition as been taken to Mr Cameron to change NICE guidelines although as yet there's been no response.

[cassy01 10]

when you have spent as many sleepless nights researching into this operation like Lillie's mum has then you can give any negative comments you like. There are different types of cerebral palsy and the ways that it affects children. This young women needs all the help she can get, so if anyone knows a way round the fund raising that we are doing then please feel free to let us know.