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Brain Haemorrhage and Aneurysm support


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Hi everyone, 10 weeks ago i suffered a brain haemorrhage and also had an aneurysm. i had surgery for 7 1/2 hours and had one vessel clipped and the other coiled. I have been told repeatadly that i am so lucky to be alive and many people just drop dead. However, I am really struggling with the recovery process. I am still in pain daily, i am physically unable to do such a lot of things, my short term memory is rubbish and i struggle with concentration for any period of time. All i hear from everyone is it could be worse but that doesnt help, i only know 2 people who have had the same thing as me and both are dead so i cannot compere notes

 

Is there anyone out there who can sympathise and have a good ending to their story? In am not looking for sympathy just someone who understands where i am at and rerassure

 

thanks

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What an ordeal you have been through. It is wonderful that you were able to access good treatment and were strong enough to pull through. I hope that someone comes along that can identify with your situation because that may help. Did you ask at the hospital if there are any support groups? Also, does the unit where you were treated have a specialist nurse that you could talk to?

Ten weeks seems a long time but isn't really long enough to come to terms with what has happened. It has been traumatic for you and your life has been changed markedly.

Being in pain makes everything much worse so I would start with that and have a talk to your GP about adequate pain relief. There is a pain clinic at Northern General Hospital but you will probably need a GP referral to access an appointment. If you can get the pain under control then you could start to deal with the emotional and physical problems that you are having. With regards to the latter, did the hospital staff refer you to an Occupational Therapist? Not knowing your exact situation, I am unsure whether this would be of help but it is something to think about. Again, you can access this via the GP surgery.

Just take one step at a time and and hopefully things will improve for you. I do hope so.

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  • 2 weeks later...

just an update, been taken off codeine and had all blood pressure medication changed and feel much much better, apparently one of the side effects of codeine is a headache so had my pain gone and the pills were deceiving me? who knows. My head is a lot clearer now although i am still physically very tired but i suppose that is the same for anyone who has been laid up for a while the muscles become flabby.

I have to go and have a glucose tolerance test now as they think i may have developed diabetis, not sure if that is through the brain problem we will know more when i go back for my next scan.

 

My problem now is trying to get some weight off while not being physically able to do a great deal excercise wise. i still cannot bend over, or lay flat so things like sit ups are out and need to be careful what i do physically as i dare not increase my BP.

 

I will get there in the end thanks ccit for your comments, i am very suprised there are no others out there going through similar problems.

 

I hope everyone is enjoying the jubilee weekend and thanks for showing an interest

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Thank you for getting back and I am so pleased to hear that you have made some progress. As you say, it is difficult to tell whether it was the medication or the fact that you are getting better, but it doesn't really matter - you are going in the right direction. Hopefully the diabetes will just be a result of the additional weight as it can sometimes be controlled by diet and weight reduction. I wish you well and hope that your health continues to improve.

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  • 1 month later...

my brother had a massive aneurysm last august he was a very fit man sports he did them all he had to have a piece of his skull cut out and has now had a plate put in he was left handed but had to use his right hand its nearly 12 months now since he had this happen to him but each day he is getting better so keep your chine upxx

Hi everyone, 10 weeks ago i suffered a brain haemorrhage and also had an aneurysm. i had surgery for 7 1/2 hours and had one vessel clipped and the other coiled. I have been told repeatadly that i am so lucky to be alive and many people just drop dead. However, I am really struggling with the recovery process. I am still in pain daily, i am physically unable to do such a lot of things, my short term memory is rubbish and i struggle with concentration for any period of time. All i hear from everyone is it could be worse but that doesnt help, i only know 2 people who have had the same thing as me and both are dead so i cannot compere notes

 

Is there anyone out there who can sympathise and have a good ending to their story? In am not looking for sympathy just someone who understands where i am at and rerassure

 

thanks

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Thanks Mags its nice to hear a success story. I am pleased your brother is on the mend.

 

I am getting much better now, i do have diabetis but we ar trying diet control to start with so off i trotted to slimming world and have lost 6lb in my first 2 weeks, its a start.

The GP also got me on an excersise by referral scheme so i go to the gym twice a week and have a trainer that stays with me and is helping me build my strength and stamina back up.

 

Also developed sleep apnoea, lol if i was a dog they would have put me down.

 

I am staying a lot more positive and have even started reading again thanks to my son buying me "50 shades of grey " for my birthday..............now i understand what all the fuss is about.

 

If anyone does know anybody who might have recently had a similar illness to me and they want a bit of support or just someone to moan at then please pass my details on.

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