Cholesteatoma in both ears

[ANGELFIRE1 10]

Maybe such a serious condition needs a discussion with a Consultant ENT Specialist to get to the bottom of the situation. There are well meaning folk on here, but maybe there are many different outcomes relating to the severity of the ailment which only a Specialist can advise on.

 

Angel.

[Balpin 12]

I know, with one of my colleagues. we always have to speak up.

He has aids in both ears, poor fellow.

[jonny121 10]

Thanks for the support everyone, just hope I retain some hearing after all this, my doctor was talking about having bone anchor hearing aids but because I'm having my left side operated on and my right cut into again because it's still infected they it could be another year before get them.

[lyndix 10]

Maybe such a serious condition needs a discussion with a Consultant ENT Specialist to get to the bottom of the situation. There are well meaning folk on here, but maybe there are many different outcomes relating to the severity of the ailment which only a Specialist can advise on.

 

Angel.

 

For someone to have been diagnosed with cholesteatoma then they must've seen a consultant, we are not trying to diagnose eachothers ailments, just suporting eachother in the years of monitoring that follows this horrible disease. Once discovered and operated on it requires regular lifelong checks to catch it should it re-appear(which it quite often does)

Its a nasty life changing and sometimes lifethreatening disease and the operation carries huge risks. The consultants/ent specialists can only offer medical advice, sometimes its good to talk to people that have gone through it and come out the other side.

[jonny121 10]

Well had my operation, and all I can say is nothing could have prepared me for this. So to all the people out there wanting the quiet life, be carefully what you wish for.

[lyndix 10]

Well had my operation, and all I can say is nothing could have prepared me for this. So to all the people out there wanting the quiet life, be carefully what you wish for.

 

Hope the op went well jonny did they manage to remove all of the cholesteatoma? xxx

[jonny121 10]

I hope they did, with the morphine and the bandaging I did pick up he looked postitive. i will know more when I go back. Well life goes on :-)

[jonny121 10]

Just need to say sitting in the house really sucks and can't wait while I can get back to running and my mountain biking, fingers crossed

[SILLY 10]

I hope they did, with the morphine and the bandaging I did pick up he looked postitive. i will know more when I go back. Well life goes on :-)

 

Hope it is a good result jonny I can remember when mine was done the wait for the all clear was awful but glad to say they are really pleased with it now. I just hope my second one turns out the same .

[jonny121 10]

I wish you all the luck in the world, trouble is we don't really have a choice over it because ignoring it can cause more harm than good :-)

[SILLY 10]

I wish you all the luck in the world, trouble is we don't really have a choice over it because ignoring it can cause more harm than good :-)

 

Thanks jonny but at least I don't feel quite so scared now that I know that it can turn out ok. It's amazing though just what they can do and I suppose that we should be thankful that ours was found and treated.

[lyndix 10]

Thanks jonny but at least I don't feel quite so scared now that I know that it can turn out ok. It's amazing though just what they can do and I suppose that we should be thankful that ours was found and treated.

 

Definitely! x

Hope your checkup goes well on Tuesday Silly, my sons is on Thursday.

Keep yer spirits up jonny, I'm sure it'll not be long before you're enjoying your outdoor sporty stuff once more XX