Anyone suffer with scoliosis?

[pain22 10]

I think perhaps you should elaborate here, I'm not sure what sad question I asked, also what do you mean I should think before I speak - are you referring to the fact that your pain is greater than mine so therefore I must have none?

 

Sorry maybe i took you the wrong way, just how you said did your pain come on instantly made me feel you was making a joke of it. Im not in a good place right now and very touchy i should not of biten.

[foxforcefive 10]

Sorry maybe i took you the wrong way, just how you said did your pain come on instantly made me feel you was making a joke of it. Im not in a good place right now and very touchy i should not of biten.

 

No worries, I asked because mine came on overnight.

 

Hope you start feeling better soon.xx

[pain22 10]

No worries, I asked because mine came on overnight.

 

Hope you start feeling better soon.xx

 

No mine seemed to gradual, i started with a bit of lower back ache and then it got worse. I hope i feel better to think im a little depressed and feeling a bit forgotten with people. I don't really go out much anymore cos of the cmt and feel my friends have simply forgot about me. Most of them dont even ring anymore , i dont go out unless it is for a night in at a friends. As i cant really drink and cant be jumping round or walking far. Im just fed up and feel lifes same **** diffrent day.

[loobylou2008 10]

Isnt scoliosis something that the pain is helped by a massage?

[sammijayne 10]

Hi, I am new to this forum, I do have scoliosis and today is 32 years since I had spinal surgery for lumber and thoracic scoliosisI was in king Edwards hospital, my surgeon was done by Mr E Evans, May 1983 it was 2 weeks before my 12th birthday. At that time there was no Internet the only information you could get was from doctor's, there so much to this condition and although I did have surgery to correct it, Around a year after I had my daughter I was referred to hospital for a x-ray as the pain had got alot worse, I was then told that I had got a second curvature, I didn't even know I could get another one because of rods on my spine,that was in the 90s.Late last year that now I have a 3rd one. Because this condition runs in my family on the female side I was worried about my daughter, I started seeing a chiropractor after my 2nd curvature, and told her about the history of it in my family, and was told that seeing a chiropractor could possibly help.

[chimay 10]

Hi, I am new to this forum, I do have scoliosis and today is 32 years since I had spinal surgery for lumber and thoracic scoliosisI was in king Edwards hospital, my surgeon was done by Mr E Evans, May 1983 it was 2 weeks before my 12th birthday. At that time there was no Internet the only information you could get was from doctor's, there so much to this condition and although I did have surgery to correct it, Around a year after I had my daughter I was referred to hospital for a x-ray as the pain had got alot worse, I was then told that I had got a second curvature, I didn't even know I could get another one because of rods on my spine,that was in the 90s.Late last year that now I have a 3rd one. Because this condition runs in my family on the female side I was worried about my daughter, I started seeing a chiropractor after my 2nd curvature, and told her about the history of it in my family, and was told that seeing a chiropractor could possibly help.

Hi Sammijayne Mr Evans did my first op in St Edwards in 1969.

He then removed the rod, which had broken in 1973. I've been let to my own devices since then. By coincidence I saw a chiropodist yesterday about a toe nail problem. He helpfully pointed out other skeletal and tendon problems from my hips down. He said that often people with scoliosis have 1 leg shorter than the other but not in my case. However my stance is terrible with my knees bending backwards to compensate. He has given me heel lifts for my shoes to improve my stance.

[sammijayne 10]

Hiya chimy, I know what you mean about being left to your own devices. The things that makes me angry is that GP's are the ones that are going to cure you, or when you get to specialists you tell them that something as happened as pain is worse, you are sent for an x-ray and weather is shows something or not, you seem to get looked at as though you're a lair or something, I am sure that most of people with scoliosis have the same sort of pain, doctors know the theoretical side of it, but we know our own bodies and we know when it changes. If you can get to see a chiropractor they may be able to help you there was not a great lot they could do for me because of the rods, I can't guarantee that they will be able to help, but if you do go to see one will you let me know how you get on ? I don't know about you but I've had every thing else. Best wishes

[sammijayne 10]

Hiya, I just wanted to pass on something I learnt, I'm sure I'm not the only person who could go through the heel of a flat shoe in a week ???? As I got older I found that if I had shoes with a small heel on it just enough to distribute my weight,as for boys/men maybe an insole could help, that bit I learnt from a guy on here, I hope some of this helps.

[chimay 10]

Hiya chimy, I know what you mean about being left to your own devices. The things that makes me angry is that GP's are the ones that are going to cure you, or when you get to specialists you tell them that something as happened as pain is worse, you are sent for an x-ray and weather is shows something or not, you seem to get looked at as though you're a lair or something, I am sure that most of people with scoliosis have the same sort of pain, doctors know the theoretical side of it, but we know our own bodies and we know when it changes. If you can get to see a chiropractor they may be able to help you there was not a great lot they could do for me because of the rods, I can't guarantee that they will be able to help, but if you do go to see one will you let me know how you get on ? I don't know about you but I've had every thing else. Best wishes

 

I've had sciatica since 2002 a physiotherapist suggested some pilates like exercises which helped a lot (sometimes I can hear and feel my spine clicking as I do the exercises). Over the last few weeks the sciatica has got worse so I mentioned it to a nurse practitioner at my GP surgery. She saw one of the GPs who gave me a quick examination and declared that I have now got damaged nerves but as the pilates usually works I should try doing them more often even when I haven't got any pain and get back to him in a month. I feel as if I'm being dismissed but will go back to see the GP and create if necessary.