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bigbill

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Posts posted by bigbill

  3. Posted

    Have to agree with that,bigbill you should happy that people are taking any interest in your thread at all without critisizing them for having an opinion of their own....

     

    I have been type 2 for just over a year and to be honest i have never taken my blood sugar levels at all...My wife has been type 1 on two injections a day since she was 19 years old...she is now just over 66 years old, 47 years a type1..she takes her blood sugar levels 4-5 times a day and all her extremities are fine as well as her eyes which are checked once a year.She has never had any trouble with her treatment from the GP or Hallamshire and receives free test strips as well as updated monitors.Just to add she also has "Hypo Unawareness" and cannot tell when a hypo may occur any more...luckily i can...The only peolple who know how distressing a bad hypo is are the people who have to contend with them....to anyone one else they would just appear to be drunk/on drugs /having a fit/or just fell down......Maybe you should re-ignite your interest bigbill to see how others cope but i do agree with you and wish you well...:)

     

    I did NOT ask for opinion I asked whether people were getting required equipment or not. Personal opinions are irrelevant.

  4. Posted

    I should say My Pharmacist did question why I needed 200 strips a month, after explaining to them, they've not questioned again, I mention it to my GP who bluntly put it, if the pharmacist or anyone including any other GPs query it again, to tell them to speak with her.

     

    it's active positive management of my health that helps with health professionals, I think if you just wait to be seen and expect to be fixed, its never going to happen, so many expect a quick fix is easy, it's definitely not.

     

    People need to learn more and be given the tools to do so, but I have encountered other diabetics that know what to say and do in front of health professionals but do everything wrong with lifestyle, no exercise, bad diet etc.

     

    It must be hard for GPS and health professionals to deal with so much failure, I can understand why they can be so resistant to people sometimes.

     

    The sad thing is the amount of T2 that must be out there undiagnosed.

     

    Absolutely, and very well put. Withdrawing Strips is a short term saving but false economy. This is what I aim to put to the local CCG.

     

    Thanks for replying.

  5. Posted

    Very true,if you do not know what your blood sugars are you cannot manage it properly.I have had 40 years plus as a type 1 and have had very few problems,i can still feel all my fingers and toes bacause i closely monitor my blood sugars to make sure of no long term problems.Withholding test equipment from diabetics is scandalous,wether type 1 or type 2.

     

    Many thanks for your reply, exactly what I'm looking for.

     

    Hopefully this will be the case for everyone. It seems new Ds are finding that they are being denied access which is why I'm trying to gather answers.

     

    ---------- Post added 08-08-2017 at 13:34 ----------

     

    T2 on tablets for more than a decade, I've never had a problem 200 test strips a month.

    G.P very understanding, as I have multiple conditions and testing helps in management those too.

     

    In addition my G.P recognises how I actively micro manage my health, in order to stay actively functional and working.

     

    It seems that CCGs are tightening the guidelines on some practices, lets hope Sheffield bucks the trend.

     

    I myself was denied as a T2 in May.

     

    ---------- Post added 08-08-2017 at 13:36 ----------

     

    My mum is a type2 and is controlled by tablets and she is able to get free test strips from her gp same as me as a type1.It appears to depend on who your gp is.My mothers blood sugars do drop below 5.0 and as low as 4.0 on rare occasions so if you are a type 2 and driving you need to be able to test your blood.Its a fallacy that type 2's do not get low blood sugars.If gp's are giving this advice then it is worrying.

     

    Many thanks for your reply. The ability for motivated Ds to actively manage their D is on of my main angles.

     

    Thanks again.

  7. Posted

    Excellent Lingarth.

     

    Current trend across the UK is to not provide them to T2s.

     

    NICE guidelines say " Meters and strips should not be routinely provided to T2s" local CCGs are applying this as "routinely not provided" which I experienced myself in Sheffield.

     

    There are huge cuts to NHS budgets coming through.

  9. Posted

    No offence to anyone, I did not intend this thread to be about how individuals do or don't manage their conditions, so, I won't go there.

     

    Please provide info re availability of strips and meters if your finding them becoming less freely available. Also, waiting lists for DESMOND courses etc.

     

    I will be pushing these issues in the local media, starting this week in The Telegraph.

  10. Posted · Edited by bigbill

    Again, I am aware of the thread in the DUK forum, I'm part of it, also I am very aware of the NICE guidelines and CCG view ( I have an upcoming meeting with them).

     

    The point is surgeries all over the UK are denying strips etc to patients without consultation , there are pros and cons to that. Such as early spotting of other problems via self testing etc.

     

    I just want Ds to feedback their experiences.

     

    Thanks.

  11. Posted

    Many thanks for your reply.

     

    This is just the sort of feedback I require.

     

    I have written a column in the Telegraph this week, depending on reaction I will be pushing this issue in the local media.

     

    Thanks again.

     

    Bill.

  12. Posted

    Yes I'm aware that these things have been freely available.

     

    However, across the UK Ds are having their scripts for testing strips withdrawn notably T2s, which I experienced in Sheffield when I requested a meter, I then bought my own and buy my strips.

     

    I'm keen to hear from others, T1s are not affected.

  13. Posted

    Hello to all ,, Im Bill Stewardson, Diabetic living in Woodhouse Mill.

     

    I'm looking into the growing problem of self testing equipment being denied to Ds in the Steel City.

     

    Are any Ds experiencing being denied meters or strips on prescription ??

     

    Many thanks.

     

    Bill.

  15. Posted

    Just to get this tread moving again, I have persisted following the above advice, results being TERRIBLE. I am only being honest here, it is soul destroying.

    Many others I have spoken to on the bank have also reached the same conclusion.

    I dont pretend to know the problem but it is a large one.

    Regulars (which I now will not be) tell me that big stuff is caught through the night.

    My personal view, that fishery is on the slow decline.

  19. Posted

    ah, some facts and figures to use to verify things.

    Many thanks for providing those which are a great help.

    When SCC respond to my FoI request I can now make a comparison, it is possible that they have performed outstandingly, we shall see.

    I will also post some stuff myself at that time.

    None if which will explain the call center staff instruction.

     

    Bill Stewardson

  20. Posted

    Reasons are obvious, to establish validity etc.If no agency can measure snowfall how did SCC manage it, therefore enabling their people to make statements such as 8 to 15 inches fell ? Along with other claims such as Twice round the world etc ? Then ofcourse certain other claims like "more than any other LOCAL authority" and 60% of roads etc, and the puzzling fact about how many miles of roads they are actually responsible for.

    Ofcourse they may be correct about everything, if so fine.

    We shall see.

    The big thing to me is why their call centre staff were told via Email after Boxing Day NOT to take names/locations ? They seem to be unable to answer this.

    I will keep you updated.

  21. Posted

    Hello to all, yes I have seen the articles that have been pushed in the local media. I also saw the article in the local media before all this weather arrived stating how ready Sheffield was and how good the responses would be. People will decide for themselves if this has been the case, as will I. This "round the world" claim may well be accurate, if SCC knows that it has gritted this huge distance surely it can tell us how many miles of road this involved(obviously they are aware of this thread). I have made a detailed FOI request, so that these "grandiose claims" can be measured against previous years. If they add up , fair enough, also it is not at all difficult to look on the Net and find out how various weather agencies have listed the snow fall in Sheffield over Boxing Night, I have seen various claims from 4 inches to 15 inches. Obviously I will take into account the validity and relevance of those making the claims. I will keep posting as and when.

     

    Bill Stewardson

  22. Posted

    Hello, i,m trying to get a meeting with SCC to look at Gritting performance. I have seen claims of 8 to 15 inches of snow in Sheffy on Boxing Night(this is at odds with weather agencies) and that SCC grits the highest percentage of roads of ANY local Authority. SCC will not say how many miles of roads this actually is. Does anyone out there have any figures or info please ? Also they will not answer why call center staff at the time were told via Email not to take any names or locations from callers.

     

    Many Thanks

     

    Bill Stewardson

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