white.rose

Hi All Just to let you know. They didn't take Blade down to theatre yesterday, because when they came to check on him in the morning. They said he was still to chesty after the Pneumonia last week. So they are going to leave him for a couple of weeks. Apart from that he is doing ok. He got weighed yesterday to and now weighs 12IB 7oz. There is still no news about when he will be coming home. But The Star are coming up on Thursday to take pictures and are going to run the whole story in the paper, as a follow on from our 16 month old daughter India and how she is now after last year. ( that was another nightmare ). Freya is doing great to, she now weighs 11IB 9oz. Will keep you all up dated. Rosemarie & family xxx

You are not funny See you tomorrow. Hugs back to you all xxx

Hi Mark, Thank you it really does mean alot to us coming from you, with what you, Janet and your familys have gone through yourselfs. People might think we are strong, but it is nowhere near what you have had to go through. We send you all our love & preys for the future. Love Rosemarie, Darren & family xxx

Hi All, Just to let you know, Blade is doing a lot better now than he was last week. He had caught Pneumonia again and at one point he was in 15 litres of oxygen ( which normaly he isn't even in 1 litre, then they did get him down to 2 litres. They said by rights he should have been on the H.D.U unit, but there wasn't enough beds, so he had to stop where he was. But the doctors & nurses where great with him and he is now back down to what he usually is. He goes to theatre on monday if he is alright,( but we will not know for def until monday morning. so that they can take a look at his throat and see how it is doing ( I think it is to make sure it is not closing up, but don't quote me on that ). I have not been able to go up for the last couple of days and for the next couple as I have come down with Bronchiolitis my self. So as you can imagine I have been going crazy not been able to see him. The nurses must be getting fed up with me, as I have been on the phone every hour or two, to see how he is. So I will let you all know. Right got to go trying to get get the cleaning done, while the other 2 little one's are asleep. Love Rosemarie & family xxx

Hi All Blade has come down with a bad chest infection a couple of days ago. The doctors gave him a chest x ray and they have said it was not good at all. They have put him straight an steriods and anti biotics to try and help. The last couple of nights he has been really bad. Darren has been up there all day with him, as Freya has been a bit of to so I have had to stop here. It is getting to the point is there ever going to be an end ?. ( I am just having one of those days today ( feeling sorry for my self, sat here crying ). We will get there. Will keep you posted on how he is. Love Rosemarie & family xxx

Thank you everyone for your pm's and messages on here they have been a great support to us. Rosemarie & family xxx

Hi everyone again. Just to let you know, Blade is still in the hospital and will be for a good few more weeks yet. They are now saying that when he does come home, that he has got to have a nurse come and look after him a couple of nights a week when Darren is working nights, so that I can get some sleep. As they have said it would be to much for me to have him and the other kids day & night on my own, as he is having to be suctioned 2 to 3 times an hour during the night down his tracky. He is stiill on the oxygen and his monitor and will be when he comes home now, Because you don't know his oxygen has come of until his alarm goes of and he turns blue straight away. The nurses had to do an emergency tracky change in the early hours of the night last night due to it blocking up and him turning blue. I will be scared stiff of that happening. He will not have a bottle at all now, we try him every day we go up, but no, so he has to be fed down his feeding tube. He has put all the weight and lots more back on now. As for his sister Freya and the other kids they are all doing great. People keep saying to us how do you cope with it all and keep going, but we simply say there our kids and we love them, what else can you say.. Right got to go now and try to get some sleep, before the kids start waking up. Will keep you all posted. Love Rosemarie & family xxx

Hi Cath, Thank you for that, it has been really hard as you will know your self, but it has got a lot better now as we know our twins are going nowhere but home with us ( when Blade decides to venture home that is, LOL ). Love Rosemarie & family xxx

Hi All Just to let you all know how the twins are going on. Well they turned 6 months this week, but guess what ?. Blade is still not home, he is now at the Childrens where he has been for about a month now. He was on the ward, but a couple of weeks ago he stopped taking his milk and his oxygen started going up. It turned out that he had picked up an infection (surprise surprise ), so he is now in a cubicle. He is still not feeding and his oxygen is still up ( the doctors turned round to us last week and said that they should have left him at the Jessops and he might have been home by now ). We still haven't got a clue when he will be coming home. He put the biggest smile on my face a couple of weeks ago, I walked into his room and he just had the biggest smile from ear to ear. ( so cute ). He now weighs about 8 Ib 14 oz as he has lost some with been badly. As for madam, she is doing just great. She is now weighing 9 Ib 9 oz and we have just started weening her. She was admitted in to the hospital last week with DV. She went on to the same ward as Blade in the next cubicle, but she was not allowed to go in and see him ( I reckon she just missed her brother,LOL ) they let her go home the next teatime. She now sleeps all through the night and awake all day. I just wished our 15 month old daughter India would LOL. Right got to go now and get some sleep, got a long day again at the hospital. Will let you all know when Blade decides to come home, don't hold your breaths. Love Rosemarie & family xxx

Hi All Just to let you all know Freya has come home today at last. The surgeons reversed her storma on Monday the 14th of January and it all went perfect and she has even come of her oxygen and is now on nothing and weighing 8Ib 6oz, so tonight will be a very scarey night indeed for us. But poor Blade is still in the Jessops ( special care part at last and not I.C.U ) and he is doing alright to, weighing 8Ib 13oz. He is still on low flow oxygen through his tracky and not his nose. but a couple of days ago we found out that Blade looks like he is going to be deaf in both ears, but they said we would no for sure in a couple of weeks time, when they have ran some more tests on him. ( we just thank god we have still got them both ) At the moment we are waiting for a bed at the childrens hospital for Blade to be transfered there, for us to learn how to do the tracky and get him home with us too. So today there was tears of happiness for Freya coming home and tears of sadness for Blade having to stay. I just can't wait now to have all my babies at home where they belong. When we have got both the twins home and settled, Me and Darren are going to raise some money up for the Jessops S.C.B.U. ( it is the least we could do in return, for what miracle they have done for us. ) So we was hoping if anybody has any ideas or any spare time and would like to help in anyway if you would get in touch with us. Right got to go and feed Freya now. I will keep you all posted on the drama twins. Love Rosemarie & family xxx

Kindness of Sheffield people had us in tears. Try this

Hi All Just to let you all know, we have spoken to the surgeons today and they are taking Freya to the Childrens hospital on wednesday morning for an x ray to make sure everything is alright with her storma and if so they are going to reverse it in a week or so for her. So fingers crossed that they can. Love Rosemarie & family xxx

Hi All just to let you know how the (Drama) twins are doing. They will be 4 1/2 months on friday (18 weeks old) and are still in the Jessops S.C.B.U. Freya is in the special care part on just a bit of oxygen, there is talk by the doctors of reversing her storma bag in the next couple of weeks, as she is doing great and almost ready to come home as she is on demand feeding now every couple of hours and now weighs 6 lb 13 oz. As for (Trouble) Blade he is back in the I.C.U.. It has been like a roller coaster ride with him. To start he had a problem with his throat, which meant he had to have an operation on it (which was on a friday about 6 weeks ago). He came back from the Childrens hospital later the same day on the ventilator, which was meant to be just over night. But he got really poorly after getting an infection in his lungs and by the wednesday the doctors were saying that there was nothing else they could do for him and asked us if we wanted him putting in our arms and his ventilator turning of, as if not he would die that night in the incubator and we would not get chance to hold him before he did. Me and my husband (Darren) both said no and that if he was going to give up he would do it him self. We both stayed by his side all night and by about 5 am that morning he started to improve, then on the saturday he had a massive bleed from his back passage which the doctors seemed to think was coursed by the steroids he was on but that stopped it self and a couple of weeks later he was doing fine again and he went back down to special care. There him and Freya got RSV and had to be put in isolation for a couple days until they got the all clear and went back. They were both doing ok on christmas day, so me and Darren went up for the afternoon with our other 3 children (after they had opened there presents of course )Then a couple of days later his throat went the same again, which meant another operation and back up to Intensive care. They took him for the operation on new years eve day, his throat was that bad it meant he had to have a Tracheotomy done ( a slit put in his throat and a tube inserted in to it ). He came back again from the childrens on the ventilator ,(We were scared stiff of the same happening again to him) but Blade had better ideas and stopped on the vent for a couple of days. He Is still on the vent but only because they are giving him c pap by it which is attached to his tracheotomy. Just until there can get him back on low flow oxygen that goes on the nose. They have told us that hopefully the tracheotomy is only for a couple of years then they will reverse it for him. Me and Darren have now got to learn how to care for him with this in and in a couple of months he can come home to. ( fingers crossed ) While we have been going through all of this with the Drama twins, the staff up there have all been terrific with caring for them and us to. We have all read and followed the heart breaking thread ' Special care baby unit jessops wing - A personal thank you ' about the 2 little twins Kieran & joel and the way Mark and his partner are trying to raise as much money as they can to help, So please please help them to reach there target. Every little penny counts. Rosemarie & Family xxx

The SCH saved my 5 week old daughter a year ago this week. There just great.

Someone find out and let us all know ?

There is a barrier going in to the car park at the Jessops wing and at 8.30pm it comes down until the next morning. Sometimes the porters will let you in if they are there, but most of the time they are not as they are based at the Hallamshire.

As some people will know on here already, I have got twins in the I.C.U. at the Jessops wing and did a ranting thread about the lack of parking up there. A lot of the nurses travel long distances to come to work there and I was disgusted to find out that the nurses are forced to pay £7.20 a day to park, which over a month can amount to quite alot of money. ( and that is if they can find somewhere to park ). I live in Sheffield and have a permit to park free, why haven't the nurses got one or at least one to pay less. Without these nurses to care for our babies, where would we be ? . Do you think it is fare ?

It has moved to the back of the Hallamshire and to the side of the Charles clifford dentist.

By ambulance most of the time I would have said or walked, When I was having my son. I phoned for an ambulance and was told the quickest they could get one to me was 25 minutes. I had him 15 minutes later at home with no one there but my husband. If I had had the car then I could have been there in time. So they are needed in most cases.

That is the road I mean, I just didn't know the name of it.

Have you been to the hospital ?, tell me where else there is to park. There is a road round the corner, but they are even making that in to permit holders only...

I have got a permit to park just in the Jessops grounds. With the twins been in there, But last saturday I parked on one of the side roads and when I came back I had a parking ticket. It was just after 3.00pm, But the **** gave me one. I did.'t think they worked that late.

I am fed up with going up to the hospital to see my twins in the I.C.U at the Jessops and not been able to park any where. Yesterday I was sat for just over an hour waiting to park. The parking up there is stupid. To say they closed down to decent hospitals ( the old Jessops & the northern ) to make this new one. Didn't the idiots how built it think about this. Is it just me or do other people think the same ? Rosemarie.

Hi all The twins are now just over 6 weeks old and doing better than what they were the other day. Blade is still up and down and he had to go back on trigger c-pap. Freya is now on flat c - pap and just abit of oxygen. But still in the I.C.U. The doctors have now said when ( if ) they come home in a couple of months, it could be on oxygen. The thought of that is scaring me stiff. They have said we will get help with them. but has anyone else had to deal with this and got any advice for us ? Thanks Rosemarie. xx

We have called our children Kelsey Jo Connor James India Rose Blade Lee Freya Louise We love them names and been a bit different from other people.