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Chronic Telogen Effluvium - anyone else suffer from it
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Old 16-09-2010, 07:14   #1
sheffbag
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Hi

My wife suffers from CTE and has done for 15 months, her hair loss is steady and following a lengthy wait from the NHS she went to a Trichologist who recommended a Ferritin test. This came back at 15 which is too low for hair growth.

She is on iron tablets along with taking Minoxil.

We have done a lot of research on the condition but one of the biggest helps she could have would be if she could talk to anyone else who suffers from CTE or who has found that increasing her Ferritin level helps.

If there are any CTE sufferers on Sheffield Forum (or any qualified medical persons) who could offer support either in a medical capacity or just someone to talk to then coudl you please pm me or post on the thread.

On behalf of my wife thank you.
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Last edited by sheffbag; 16-09-2010 at 08:25.
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Old 17-09-2010, 15:38   #2
sheffbag
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Anybody suffer from this????
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Old 17-09-2010, 19:20   #3
BJan
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Hi, I had this.... my ferritin was around 13 so also much too low. Iron did help and my hair grew back, although it does take a while to notice a difference and for your ferritin levels to pick up.

I find it really strange that GPs don't seem to know about this. I also had to wait months, tried all sorts of products bought off the internet until I found a website one day saying about the link between anaemia and hair loss. The GP had tested for anaemia, but the article said to test for ferritin levels. So I went back, and was referred to a trichologist who suggested a ferritin test, she said they usually only test haemoglobin levels which, even though it might be in the low normal range, does not always show how low your iron levels really are. I struggle with oral iron intake, as it makes me really constipated but I've found spatone to cause me less problems. You have to take vit C with iron otherwise it doesn't get absorbed very well, and also avoid tea for about an hour before and after taking the iron.

All the best to your wife, at least now she knows what is wrong and chances are her hair will all grow back
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Old 18-09-2010, 14:36   #4
sheffbag
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Hi BJan

i think she is the same boat as you were, the GP's seem to know very little about it and the NHS dermatologist just seems to have a come back in 3 months attitude with no positive treatment recommended.
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