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Suffering from tinnitus?

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https://www.facebook.com/groups/700177863513394/

 

I have created a Facebook group that tinnitus sufferers may wish to join or view. I would like to get enough members with a view to setting up a monthly discussion group where we could share our experiences.

 

Please share this on your Facebook if you think you know anyone who could benefit.

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https://www.facebook.com/groups/700177863513394/

 

I have created a facebook group that tinnitus sufferers may wish to join or view. I would like to get enough members with a view to setting up a monthly discussion group where we could share our experiences.

 

Please share this on your Facebook if you think you know anyone who could benefit.

 

I joined the 'We have tinnitus' group on Facebook some years ago. I didn't stay on it for very long though, as I found that just concentrating on writing about it made me more aware of the buzzing in my head (like now, actually).

 

Also, it doesn't help to just read about a load of people moaning about how bad it is this morning and quack 'remedies' such as teepee candles, acupuncture, hypnosis, and hyperbaric chambers. There is no cure and I, like everyone else who has it, just has to either put up with it, or go down the other route.

 

Having said that, I do believe there's still a monthly discussion group at the Royal Hallamshire if you're interested. I dropped out of it for the aforementioned reasons (by the sufferers, not advice of the tinnitus specialists and counsellors).

 

I wish you well with your facebook group, but it's not for me.

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I had tinnitus. It stopped when I was given hearing aids. It returned when I was taking medication for trigeminal neuralgia, just one of the many horrible side effects of the pills. It has now gone again since I had an operation for the TN, and no longer have to take the pills.

Those suffering tinnitus might be because of seemingly unrelated causes. Worth thinking about anyway.

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I joined the 'We have tinnitus' group on Facebook some years ago. I didn't stay on it for very long though, as I found that just concentrating on writing about it made me more aware of the buzzing in my head (like now, actually).

 

Also, it doesn't help to just read about a load of people moaning about how bad it is this morning and quack 'remedies' such as teepee candles, acupuncture, hypnosis, and hyperbaric chambers. There is no cure and I, like everyone else who has it, just has to either put up with it, or go down the other route.

 

Having said that, I do believe there's still a monthly discussion group at the Royal Hallamshire if you're interested. I dropped out of it for the aforementioned reasons (by the sufferers, not advice of the tinnitus specialists and counsellors).

 

I wish you well with your facebook group, but it's not for me.

 

I am the same with it,i dont notice it until i am reminded of it and then i can hear it.I first started with it 20 years ago and i suffered from serious depression and anxiety but i have learned to live with it.It doesnt bother me at all now.It is sad that so many people take their own lives through it,i think most people who have been in loud environments suffer with it.Music is what did me,being close to guitar amps at a high volume and lots of rock concerts and night clubs didnt help.:hihi:

Edited by mort

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Thank you for the replies, I 100% agree that all the negativity out there about tinnitus does not help at all, I have started the group so we could maybe share our experiences and just reading your replies here makes me feel better by understanding I am not the only one experiencing this.

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I think I have tinnitus,always buzzing sound in my ears.can't bear loud sounds,get easily headaches because of sound. (specially my kids voices vibrates and hurt my ears when they bit loud) I m very frustrated of this.

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I think I have tinnitus,always buzzing sound in my ears.can't bear loud sounds,get easily headaches because of sound. (specially my kids voices vibrates and hurt my ears when they bit loud) I m very frustrated of this.

 

Yes thats it,over time you learn to cope with it and get used to it.Hang in there as getting stressed makes it even worse.If you need to, try and seek help,the British Tinnitus Association is based in Sheffield.https://www.tinnitus.org.uk/sheffield-tinnitus-support-group

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Almost 10 year ago I started hearing cracking/crackling/popping sound in my ears when ever I swallow,it's was really lound and in starting I doesn't figure out where its coming from behind my ears,back of my head(some time feel egg cracking inside my head) but then I figured out its coming inside my inner ear,in starting I get annoyed and can't talk longer because it does sometimes coming when I talk and make me confuse .I had been to 3 doctors,they checked my ears and said everything looks fine etc.now I feel these sounds do quite distraction to me.it give me tinnitus,I get angry so quickly because I can't speak much,my ears and head start hurting and I feel frustrated ,all the time I tell my kids speak slowly. I m used to now this buzzing hissing ,cracking (with every swallowing)sound specially when it's quiet. I often think would I ever be normal like before.

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It is sad that so many people take their own lives through it,i think most people who have been in loud environments suffer with it.Music is what did me,being close to guitar amps at a high volume and lots of rock concerts and night clubs didnt help.:hihi:

 

Sad story about Inspiral Carpets drummer, Craig Gill, killing himself after 20 years of tinnitus.

 

https://www.theguardian.com/society/2017/may/05/inspiral-carpets-drummer-craig-gill-inquest-tinnitus

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The British Tinnitus Association are having a free information day on July 15th at the Hilton Hotel, Victoria Quays. Details can be found on their website.

 

---------- Post added 22-05-2017 at 10:04 ----------

 

Thank you for the replies, I 100% agree that all the negativity out there about tinnitus does not help at all, I have started the group so we could maybe share our experiences and just reading your replies here makes me feel better by understanding I am not the only one experiencing this.

 

Great that you're wanting to do something, have you been to the BTA tinnitus support group in Sheffield before?

 

---------- Post added 22-05-2017 at 10:06 ----------

 

Yes thats it,over time you learn to cope with it and get used to it.Hang in there as getting stressed makes it even worse.If you need to, try and seek help,the British Tinnitus Association is based in Sheffield.

 

Glad to hear you recommending us, thank you.

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The British Tinnitus Association are having a free information day on July 15th at the Hilton Hotel, Victoria Quays. Details can be found on their website.

 

---------- Post added 22-05-2017 at 10:04 ----------

 

 

Great that you're wanting to do something, have you been to the BTA tinnitus support group in Sheffield before?

 

---------- Post added 22-05-2017 at 10:06 ----------

 

 

Glad to hear you recommending us, thank you.

I may go and have a look,it would be interesting to hear other peoples stories of living with tinnitus.Mine is nowhere near as bothersome as it used to be because i now accept it and have stopped fighting it.I also found out that i had an underlying illness,thyroid disease, which was making it much louder,it quitened considerably once i started treatment.

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I get a sound something like a bird singing, only short bursts but repetitive in the left ear. I'd had an ear infection in this ear and it send this ear totally deaf, too. In the other ear, when I'm tired and my wife speaks to me in a loud voice I get a sudden feeling accompanied by a sound like someone dropping a pile of books. There is a thump from each book as it hits the floor, giving a sort of "rrrrrump!" effect.This feeling is exaggerated when I have to respond or even just reply. It distracts me from what she's saying. I sometimes get the sound and feeling from people on the TV, too. The audiologist at the hospital told me that sometimes a muscle in the ear goes into spasm when something, eg a loud voice, causes nerves somewhere, maybe my brain maybe my ear, to make the muscle flutter. He said they could cut through the muscle and see if that stopped the problem but it transpired that my age and medication intake made the operation, under a general anaesthetic, inadvisable unless things got worse. I'm 81 years old. So for now I just live with it.

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