Hi all

Just wanting to know if there's anyone in the area who has BIH/IIH??

or has a Shunt fitted??

many thanks

Amy x

My mate liz has had a shunt fitted , she had it done last year. I can ask her to post on here or pm you x

My daughter Tegan (who is 22 months old) has a VP shunt which she had fitted at birth. Hers is for Hydrocephalus though. If you have any questions feel free to ask :)

Awww does she cope well with it?? my condition is more or less the same has Hydrocephalus, did she have it fitted at the childrens? my surgeon is also a pediactric surgeon at the childrens!
Amy xx

Hi Amy

my son who is almost 5 has a VP shunt ... he has had several for various reasons...His first fitted was May O7... please feel free to ask any questions that you want to know or just for support ... you can reply here or you are welcome to pm me if you need more private information ..

regards
Helen

My daughter Tegan (who is 22 months old) has a VP shunt which she had fitted at birth. Hers is for Hydrocephalus though. If you have any questions feel free to ask :)

This is what my mate liz has hydrocephalus, x

Aww thanks everyone, At the moment my shunt is playing up, not draining as much, then over draining!!! only had it in 5 months so still early days,

Hope everyone is well and enjoying the sun!!

Amy x x x

Sounds to me like you need a shunt revision from your neuro .. have you been in contact with them in regards to this ... dont want to scare you but if your shunt is not draining correctly then this can be a serious issue ,, too much fluid on the brain will then cause your head and brain to swell then obviously you will then also suffer the usual , headaches , sickness passing out , high temps and fits ... If you have not already been in contact with your neuro consultant then I would do as soon as you can ,, it could also be that you have a viral infection and this is also playing havac with your shunt .. or just the simplest of things is to have the shunt turned up or down to see if that improves with the draining

regards
Helen

Thanks Helen, I'll call my doctors secretary on Monday xxx

Hi

have you got in touch with the consultant ?
what have they advised you

hope things are improving
regards
helen

Hiya Helen,

Spoke to my consultant very unsympathetic sesretary, who said he's on leave until next monday!!! so i went to my GP who said the sun doesnt help

thanks for concern Helen
x x x

Hi
That is so much BULL more like the GP does not have an answer as this is not his area of expertise etc,, I would get back in touch with the consultant secatery and tell her that you need to see one of his/her registrares . They have other docs whom work under the main consultant ..
The heat affects everyone in many different ways BUT does not affect how the shunt works hun.. my son whom has one fitted has never had any problems with the heat and how his shunt works ....the things that some gp's say never seam to amaze me

best regards
Helen