hello.
im 23 and for years have has bad pain in my stomch which is getting worse i cant actully move its so painful, my legs hurt at the hip and top when i walk, mt back is so painful again its debilitating,, atm im in bed i cant move im in so much pain i dont know what to do.
i went for an ultra sound pelvic and abdominal, suffer from bad depression due to constant pain, discharge which is clean, fluid in my ovain tube ( but still waiting on results) and a retroverted utreus,
I have not got std sti ive been check numberous amonts..
I cant have sex its too painful ... im in uni and i dont know if i can keep going as im in so much pain... doctors say i have ibs last year but im soo ega to find somthing to take away the pain !!! anybody at all ??? help????:help::confused:

I know other people who have had to suffer this extremely painful condition so I can certainly sympathise with you. Because pain can't be seen it's easy for others to not be able to understand how bad it is.

My only suggestion is to keep going back to your gp until they realise exactly how bad it is affecting you. Maybe try a different gp at the same surgery as some can be more empathetic than others?

My daughter used to have it very badly but doesn't seem to suffer quite so much these days. Some people say having a child helps but I also know of other people who have had problems concieving because of the endometriosis. Maybe if you Google you'll find some kind of support group or help line who will be able to give you more advice?

Your gp could also refer you to a pain management clinic at your local hospital (if they have one) and they should be able to help you manage the pain.

Have you tried Voltarol? One person I know says it's the only painkiller that helps her. Good luck.

i suffered similar myself for many years.i wish i could help you but i can t.i had it so bad it stopped me eating and drinking with pain and doubling over.i ended up losing alot of weight, when i did nt need to,.i got taken in hospital for loads of tests.they did alsorts but found nothing and said i b s.this was the worst i had it.it was about 7 years ago. i still have odd bit but nothing to what it was.i did nt change my life or anything.i tried all different pills and medicines nothing worked. just keep goin to gps. i m @ pain clinic and this as helped but its what you have to do to get there.just try and hang on pester docs till you feel abit better @ least.good thing to do is keep a diary of what you eat and drink and how it affects you.you could yourself see a pattern.hope you get sorted.dawn

thanks guys :) im pestering my gp like mad! and il ask them about voltarol... I dont think i can concieve yet due to - no work a student and having a baby needs a stable home first .. its a nice cure though just a bit soon.. :) hope your daughters better and im looking for a pain clinic at the moment .. thanks again guys :)

Jenny, I'm going to PM you.

Hi Jenny, I've suffered from Endometreosis since i was 14 years of age and now have had 5 children (my first being on recommendation i may not be able to have children and that it can help sort the problem.) I sadly never got relief after having my babies and have over the years tried Laser treatment, hormone tablets/injections and every time ended up on stronger and stronger painkillers. I found a Tens Machine to help in small amounts along with the Painkillers, but was finally given the long awaited Hysterectomy in Jan this year as a last resort. This is obviously not a solution for you at your young age, but I am more than aware of the pain and heartache caused, as took me 23 years to get some real relief hopefully.

Keep on the GP's back and try to get refered to Miss Conor at Jessop Unit, she's fantastic and very understanding.

What have you tried for pain relief?

You have my sympathies jennyjenjen- my endometriosis started as a result of the chemo used for my cancer and I had no option but to consider a hysterectomy because I couldn't use any of the hormonal drugs which are often used to control endometriosis.

Keep on keeping on, get a referral to make sure that the most that can be done is being done and invest in a TENS machine which has 4 pads if you can. I have two and found that when I was having a really bad attack the only way I could sleep was with both TENS machines going full pelt (one on my front, the other on my back), two hot water bottles and a very good slug of gin. This was on top of my daily pain relief for my tumour (which include methadone, amitriptyline, naproxen and carbamazepine) so I'm in no way underestimating how much trouble you're having in coping.

Good luck :)

I have a close friend who had/has endo, she has had a hysterectomy as it had gotten so bad in her. No kids, but at least she isnt in constant pain, and as she said, if having a baby didnt cure her she would be in no state to look after baby. Now she is already feeling better and said she will adopt if she chooses to have kids.
Anyway, before the hyserectomy she was on the pill, so that she could run several packs together and thus have fewer periods. Also she had something called "mefenamic acid" on prescription from the gp whch she said did help. also cocodamol and voltarol, hot water bottles, evening primrose oil and lots of chocolate. You may have tried these already.
I do sympathise with your pain, I have terrible pain with my stomach but gastro related not lady-thing related.
I hope you manage to get this under control, good luck

Please research carefully when trying to get pregnant to sort this out..

As an ex sufferer( due to age) was told by Prof XXXXX that I would not get pregnant and was told I did not need to take the pill, but hey I did get pregnant, that ended in an 10 week ectopic that nearly cost me my life.

Due to many operations for scar tissue/micro/infections/cysts/loss of tube/ surgery etc now have no children.
I was told 30% of woman have endo(facts maybe wrong) and some suffer more than others. Here is a link that may help. It is recognised as a disability in some cases.

http://hcd2.bupa.co.uk/fact_sheets/html/endometriosis.html

I just thought I'd share some things I found out whilst researching endo for a friend. I do a lot of research on natural health and remedies and wanted to help her with her pain so focussed on endo for a while.

Firstly, taking the "pill" will actually long term make the problem worse, it messes up your hormones, which is part of the problem in the first place.

Two, I've head of someone getting relief from having a gluten free diet.

A lot of people get relief from taking a natural hormone balancer. With my friend we found taking Chasteberry really helped, and whilst the symptoms and pain are still there, the pain has decreased. It may be that it will take her a while for the effects of taking the pill to leave her system. Chasteberry is great for any hormone related problems in women as it naturally balances the female hormones- which are the root cause for things like Endo/PCOS/severe periods etc.

If anyone does decide to take it, I would be interested to find out how you get on.

Hi , I suffered from endometriosis from being 13yrs old i really do sympathise with you because sometimes the pain is immense, I have had several different types of painkillers . I recently had my daughter and have not had any symptoms since and the labour was far less painful than a bad bout of endometriosis .
Hope you find something that works for you soon