was at the hospital the other day and my daughter ( cerebral palsy, poss autism and other things ) kicked off big style. they had got her out her wheelchair buggy and in the time it took me to get a good grip on her and lift her back in i had been kicked 3 times in the face.

the doc and 2 nurses over the next 30 mins of tantrum kept asking if she was tired :mad:

seriously a child creating that much noise and caios did she look tired?!?

:rolleyes:

all im ever told is just ignore it but shes going to end up hurting either herself or someone else badly one of these days

( shes on the floor lashing out at everything at the moment )

was at the hospital the other day and my daughter ( cerebral palsy, poss autism and other things ) kicked off big style. they had got her out her wheelchair buggy and in the time it took me to get a good grip on her and lift her back in i had been kicked 3 times in the face.

the doc and 2 nurses over the next 30 mins of tantrum kept asking if she was tired :mad:

seriously a child creating that much noise and caios did she look tired?!?

:rolleyes:

all im ever told is just ignore it but shes going to end up hurting either herself or someone else badly one of these days

( shes on the floor lashing out at everything at the moment )
Most do not understand what you go through though do they?

nope they definatly dont. one doctor sent a letter to other docs saying she walked normally :o and that she talks in full sentences :suspect: would love to meet that child cos it sure aint the one i live with

nope they definatly dont. one doctor sent a letter to other docs saying she walked normally :o and that she talks in full sentences :suspect: would love to meet that child cos it sure aint the one i live with

have you managed to get a diagnosis?

yes my daughter has cerebral palsy caused by 2 brain hemorrages when she was 3 days old. shes also down as having a social/communication disorder which they think is autism. they wont diagnose that till shes 5 thou as she has a very rough start to life and want to be sure thats not causing problems with her communication

I don't think doctors and nurses are ever very helpful. They are always asking daft questions like when you scream in pain they say "Does that hurt? " I think waiting till she's five isn't very helpful either. After all if she's got problems socially she is going to need help before then. Whatever the cause of her problems she needs to be assessed as to needs. Has anyone mentioned that? I would ask your GP.

Sorry to hear that you are having such a bad time :(
I totally understand as I have a child who has Autism and ADHD.
I have been very fortunate regarding the medical/professional care that we have received.
I find the the general public's attitude towards children/people with SN much more difficult to deal with, how bout you?
Hope things improve for you. :)
Xx

i hate joe publics attitude to her
i had her called lazy if im carrying her, one lady told me my child was rude and lacking manners for not telling her her name (wont repeat my response lol ) and one lovely person who told me she needed a smack when she was having a scream

oh and then there was a delightful bloke when my girl was just out of hospital on oxygen and the ng tube who asked "wouldnt it be better if she just died"

ive always found getting a diagnosis out of docs hard.

with her movement first i was told it was abnormal tone due to prematurity and would be gone by the time she was 18 months then i was told she was just delayed and would catch up and only found out she had been diagnosed with cp when another doc read it out from a letter, turns out they always expected it to be cp as brain damage was noted on a scan at 14 weeks.

the autism poss diagnosis again ive been told ex prems can be a bit delayed first few years which is why they wont diagnose even thou they express concerns about lack of respone, her tempers and her obsession with putting things in and out of boxes

Unbelievable arn't they.
I remember when my child first started school and one of the other mother's said to me "How did he get this disease then" referring to my child's Autism!
You just can't educate the ignorant so most of the time now I just leave them with their sad opinions in their sheltered lives.
I wouldn't change my Son for anything, his disability is part of who he is and he has taught me so much about human nature!
Be happy :)
Feline01
Xx

my best comments came from family my sister said my daughter couldnt be disabled as she didnt look funny! and what is she meant to look like?
my dad also refuses to believe theres anything wrong as a gypsy told him she would be fine, this was a day before the consultant rang him to say she probebly wouldnt live to the end of the week

oh docs have told me to get her to play with normal children so she will learn how to behave. hmmmm this is a child who doesnt do playing, who is scared of the vast majority of children and the last time one tryed to make friends with her she got so excited she started screeching and flapping and the other child thought she was trying to hit her :(

People can be very quick to jump to conclusions about other peoples children -mostly out of ignorance (but occasionally downright stupidity), and my heart goes out to you, and to your daughter, as I think kids pick up on these things too.

We've had problems on the other side of the coin, with people (much like your Dad) refusing to accept our son has a problem and saying things to us like "oh he's fine", "boys are always a bit slow", or "he'll grow out of it" etc etc, which is wrong, insulting to me, and quite frankly is the kind of attitude that makes it harder to get appropriate help even after a diagnosis.

Rant over :D

My sister's youngest boy has terrible scars across his head from the lifesaving surgeries he had as a tiny, and as a 9 yr old. (he had craniosynostosis:- the skull had sealed before birth leaving him with bad brain damage, too:- he's fifteen, but only functioning at about 20 months/ 2 yrs old)

You would not believe the sheer numbers of people who gawp at him, and say to her;-

"ooohhh what's 'eee dun t' 'is ee-ad?!"

She got so sick of this, that she started to retort, to the enquirers,
"Isn't it obvious? I was giving him a haircut, and I slipped with the clippers!"

My son has recently been diagnosed with Aspergers, and although he is for the most part "normal", he does have his moments. I have learned to ignore the peoples comments, and just different ways to calm him down. For example, if we are going somewhere, we explain to him exactly where we are going and which route, otherwise he will get upset as he wasnt expecting what we do. If he has a tantrum in public, I pick him up, give him a hug and talk to him like an adult. He calms right down and is back to his good old self soon enough.

I know that life will be hard for him with ignorance, prejudice and idiocy, but as long as he knows that me and his mum are here for him, hopefully he can do anything that he wants to do. I wouldn't change him, because then he wouldn't be exactly who he is.

My son has recently been diagnosed with Aspergers, and although he is for the most part "normal", he does have his moments. I have learned to ignore the peoples comments, and just different ways to calm him down. For example, if we are going somewhere, we explain to him exactly where we are going and which route, otherwise he will get upset as he wasnt expecting what we do. If he has a tantrum in public, I pick him up, give him a hug and talk to him like an adult. He calms right down and is back to his good old self soon enough.

I know that life will be hard for him with ignorance, prejudice and idiocy, but as long as he knows that me and his mum are here for him, hopefully he can do anything that he wants to do. I wouldn't change him, because then he wouldn't be exactly who he is.
That is a great attitude. You sound like a really good parent

My son has recently been diagnosed with Aspergers, and although he is for the most part "normal", he does have his moments. I have learned to ignore the peoples comments, and just different ways to calm him down. For example, if we are going somewhere, we explain to him exactly where we are going and which route, otherwise he will get upset as he wasnt expecting what we do. If he has a tantrum in public, I pick him up, give him a hug and talk to him like an adult. He calms right down and is back to his good old self soon enough.

I know that life will be hard for him with ignorance, prejudice and idiocy, but as long as he knows that me and his mum are here for him, hopefully he can do anything that he wants to do. I wouldn't change him, because then he wouldn't be exactly who he is.

The greatest problem that he will have to overcome is the fact that he has a hidden disability and as you say people misunderstand why he can behave inappropriately.
I went to London a few weeks ago with my 18 year old son with AS, my husband and my daughter. We were in a street in SW1 and my son and husband were having a disagreement and my son
started to shout at my husband at the top of his voice,then he began swearing as my husband had been unhappy with something my son had done. The residents were all peering out of their very posh windows so you can imagine how I felt. I was worried the hotel that we were staying in were going to ask us to leave, but it all ended OK .

This is my daily life with Asperger Syndrome,and , as I have it myself things can be diffdicult to say the least!

my son throws temper tantrums when were out i have just learnt to ignore people around me and deal with him the only thing that embaresses me is when he starts swearing at the top of his voice
as we all say with kids with autism its a long haul there disability is not visble to people