Hi

Ii would like to do some research on The Forum.
I would like to know:

Do you have , or think you have Asperger Syndrome?

If so, are you a man or a woman

How old are you?

When did you get a diagnosis, if applicable.

Do you have a job?

Do you have a partner?:thumbsup:

Thanks.It is appreciated

Yes
Man
32
October 1999
Yes, voluntary
No

If your after a statistic do a search for "better services for autism" Sheffield trust did a consultation report last november in response to it that has an estimated number on it (A gross underestimation in my opinion) Off from memory they have 500 on the books they know about and reckon 5000 are out there that they dont know about

To answer questions

Yes, AS diagnosis

Man

26

Diagnosed 1992 by Patricia Howlin @ St Georges in South London

Yes, Staff Nurse

Yes (also has AS)

Thanks for your replies.If you know anyone else, I would appreciate it.

It appears that there are more children getting diagnosed than adults as the rate of diagnosis for them is not hindered by the fact that Sheffield care Trust have a limited number of adults from Sheffield(something like just 8 ) that they can diagnose a year.
This is a scandal, IMO.:mad::mad::o

It's quite concerning that you state "Sheffield care Trust have a limited number of adults from Sheffield(something like just 8 ) that they can diagnose a year". How have you got this information? Surely this is just like saying "Jessop's Hospital can only deliver 2 babies per day" or "the Northern General can only diagnose 12 people a year with breast cancer". Mental Health Workers, including Psychiatrists, for Sheffield Care Trust assess people with all kinds of mental health conditions, including Aspergers and other autistic spectrum disorders, everyday. Why would they only be allowed to diagnose 8 people per year??? If someone has Aspergers, they have Aspergers. So, tell me, what happens when they've assessed the 8 people that do have it?? Lie to the next person who comes through the door with Aspergers and tell them they haven't?? That would be like telling someone with cancer that they don't have it. It doesn't work like that I'm afraid. Also, diagnosis is NOT based on funding if that is what you're eluding to.

I'm sure if you were to contact Sheffield Care Trust they would be more than happy to point you in the direction of specialist Aspergers services for your research.

Espadrille, could you provide a link to show us all what you have said in post number 4 please?

I'd be very worried if what you have said is right.

Thanks.

Espadrille, could you provide a link to show us all what you have said in post number 4 please?

I'd be very worried if what you have said is right.

Thanks.


There is of course no link.It is something that I have been told by a colleague who works in the field of autism.
there are countless numbers of people out there who need help with their problems that they encounter as a result of having AS, but there has to be some provision that is put to one side in the SCT care budget for AS people and , if they do not have the money in the budget then they cannot work with the people.It is as simple as that.:help:

It's quite concerning that you state "Sheffield care Trust have a limited number of adults from Sheffield(something like just 8 ) that they can diagnose a year". How have you got this information? Surely this is just like saying "Jessop's Hospital can only deliver 2 babies per day" or "the Northern General can only diagnose 12 people a year with breast cancer". Mental Health Workers, including Psychiatrists, for Sheffield Care Trust assess people with all kinds of mental health conditions, including Aspergers and other autistic spectrum disorders, everyday. Why would they only be allowed to diagnose 8 people per year??? If someone has Aspergers, they have Aspergers. So, tell me, what happens when they've assessed the 8 people that do have it?? Lie to the next person who comes through the door with Aspergers and tell them they haven't?? That would be like telling someone with cancer that they don't have it. It doesn't work like that I'm afraid. Also, diagnosis is NOT based on funding if that is what you're eluding to.

I'm sure if you were to contact Sheffield Care Trust they would be more than happy to point you in the direction of specialist Aspergers services for your research.

No, the person who gives out the diagnosis would not have the person referred in the first place as I guess that there is a waiting list so they will see so many in a year.The budget has not been managed properly so they do not have the resources to fund it.

If your running a professional company to help and advise people with Aspergers, then surely you already have direct links to such information within the health service?

If your running a professional company to help and advise people with Aspergers, then surely you already have direct links to such information within the health service?
yes, but I guess that they really dont want to make this public do they?

yes, but I guess that they really dont want to make this public do they?

Sorry I don't understand your answer? do you have access? What are you saying they don't want to make public, and for what reason?

Technically speaking what Espradille describes may actually take place though it will be due to funding issues and how the NHS is structured and only down to the NHS not other organisations. This is because of the way funding is given out to all the various departments/trusts/foundation trusts etc that make it up.

When Margret Thatcher was around she brought in this concept of "market forces" into the NHS, this is why things like cleaning of hospitals and clinical waste are now handled by private companies which bid to provide the service to the strategic health authority. This is why Recently Sheffield uni lost the right to provide nurse trainning for the South Yorkshire area in 2005 for example (they lost to Sheffield Hallam's bid, which was better)

The NHS trust for Sheffield is divided into a North and South team and they estimate each financial year what money they will need to "buy" the services they require. So the director of these services if you like is buying what will be required to meet the estimated need. This isn't just the NHS that does this btw this is local government in just about all departments which is why short term immigration from the eastern european states overwhelemed services in various parts of the country.

In sheffield we have a unique system for census information which is based at the Ryegate centre were children diagnosed with disabilities are registered on a database (forgot the name of it)

That number of estimate diagnosis is probably what they are funded for. But the NHS is not the only organisation which can carry out such diagnosis. You can pay Digby Tantum a big fat cheque and have him do what the NHS would do anyway for example. MENCAP have diagnosed people, that scandelous company DORE can do diagnosis. Only problem is if other services will accept the organisations assessment if it is outside the NHS.

Technically speaking what Espradille describes may actually take place though it will be due to funding issues and how the NHS is structured and only down to the NHS not other organisations. This is because of the way funding is given out to all the various departments/trusts/foundation trusts etc that make it up.

When Margret Thatcher was around she brought in this concept of "market forces" into the NHS, this is why things like cleaning of hospitals and clinical waste are now handled by private companies which bid to provide the service to the strategic health authority. This is why Recently Sheffield uni lost the right to provide nurse trainning for the South Yorkshire area in 2005 for example (they lost to Sheffield Hallam's bid, which was better)

The NHS trust for Sheffield is divided into a North and South team and they estimate each financial year what money they will need to "buy" the services they require. So the director of these services if you like is buying what will be required to meet the estimated need. This isn't just the NHS that does this btw this is local government in just about all departments which is why short term immigration from the eastern european states overwhelemed services in various parts of the country.

In sheffield we have a unique system for census information which is based at the Ryegate centre were children diagnosed with disabilities are registered on a database (forgot the name of it)

That number of estimate diagnosis is probably what they are funded for. But the NHS is not the only organisation which can carry out such diagnosis. You can pay Digby Tantum a big fat cheque and have him do what the NHS would do anyway for example. MENCAP have diagnosed people, that scandelous company DORE can do diagnosis. Only problem is if other services will accept the organisations assessment if it is outside the NHS.
Thanks for that reply
I am pleased to say that The Dore Foundation are now finished as they went bankrupt.

Thanks for the info thats really interesting.

Sorry I don't understand your answer? do you have access? What are you saying they don't want to make public, and for what reason?

Hi
I assumed that you had read the post after mine.
I have been told by someone that I know that this happens in SCT.
Of course they will not shout it from the rooftops as it is not very good for their image.How does it look?
A service based in Sheffield, supposedly for Sheffield Users but other areas like Rotherham have put money to one side, but they have not.

Hi, yes I did read your posts, I was just curious, I had tried clicking on the link for your company but none of the website loaded.

I suppose what I was interested about was, if you are a company working to help people with AS, then you must have good ties with the NHS and access to their data regarding AS in Sheffield.

If you are questioning this data - based one what someone you know has told you - then how can you offer a professional service to your clients?

Does that make any sense? :)

Hi, yes I did read your posts, I was just curious, I had tried clicking on the link for your company but none of the website loaded.

I suppose what I was interested about was, if you are a company working to help people with AS, then you must have good ties with the NHS and access to their data regarding AS in Sheffield.

If you are questioning this data - based one what someone you know has told you - then how can you offer a professional service to your clients?

Does that make any sense? :)

Sorry.the website sometimes to stick and then load.I will have to ask the guy who did it to look at it tomorrow.Just clicked on it and it came up straight away.Not technically minded I am afraid.

Unfortunately, I do not have access from the SCT to their data, only what I know from someone who told me and also it was mentioned last week by someone else at the Asperger Conference.I am also part of a group of parents with AS.
I try to offer a professional service to my clients, who can be companies who need to know more about As, and individuals who have been diagnosed with AS

Sorry.the website sometimes to stick and then load.I will have to ask the guy who did it to look at it tomorrow.Just clicked on it and it came up straight away.Not technically minded I am afraid.

Unfortunately, I do not have access from the SCT to their data, only what I know from someone who told me and also it was mentioned last week by someone else at the Asperger Conference.I am also part of a group of parents with AS.
I try to offer a professional service to my clients, who can be companies who need to know more about As, and individuals who have been diagnosed with AS

I see, I wasn't being (or meaning) to be rude, I was just genuinely interested :)

my son has AS, he is registered with Ryegate, if that helps.

I see, I wasn't being (or meaning) to be rude, I was just genuinely interested :)

my son has AS, he is registered with Ryegate, if that helps.

Is he OK?
Is he getting support from them?My son was diagnosed by Ryegate also when he was 11.No aged 18 and he works for Keir as an apprentice plasterer

he's fine, yes he gets support from them and the Educational Psychologist, I find I have to keep on peoples backs a bit though, but there is a severe lack of educational psychologists in Sheffield, so they are spread very thinly.

I am pleased to say that The Dore Foundation are now finished as they went bankrupt

Ah good, they were ripping people off big time.

Ah good, they were ripping people off big time.

Yes , what they did was very expensive and it was questionable also.

Can anyone else give any feedback about numbers.For instance, if you have a friend or someone in your family, it is interesting to get their perspectives and know that there are many out there.

There is soon to be a national study to get the numbers of autistic people in the country, but I am not sure if this is just adults or children aswell, and I assume that this will take ages to compile:(

My son is currently awaiting a multi disciplinary assessment at ryegate, they are testing for ADHD, AS, ASD, ODD, OCD, Dyspraxia.

He has been under CAMHS & Ed Psych, but no-one seems to be able to help, he also has non true precocious puberty, a profound unitateral hearing loss, is in an Inclusion centre as his school excluded him, because they couldn't deal with him & seemingly have no idea as to how to handle a child displaying AS & ASD (they also wouldn't listen to the advice given by myself a trained nursery nurse, Camhs, Ed Phsych, & the early years inclusion service) which is not helping the poor mite.:rant::loopy::suspect:

I have been fighting for the poor man since he was 2 & am only just getting somewhere, problem is having to fight with GP's to listen, then SEN within the council for classroom help, the LEA to get him back into a school (none of the schools want to know!) & no-one will entertain us until he has a 'label' & diagnosis, this is more frustration for me especially as ryegates MDA dept CLOSES for the 6 week holidays (WHAT'S THAT ALL ABOUT!!!):rant::huh::rant:

anyway the appt for his MDA is on the 16 sept, wish me luck!!

My son is currently awaiting a multi disciplinary assessment at ryegate, they are testing for ADHD, AS, ASD, ODD, OCD, Dyspraxia.

He has been under CAMHS & Ed Psych, but no-one seems to be able to help, he also has non true precocious puberty, a profound unitateral hearing loss, is in an Inclusion centre as his school excluded him, because they couldn't deal with him & seemingly have no idea as to how to handle a child displaying AS & ASD (they also wouldn't listen to the advice given by myself a trained nursery nurse, Camhs, Ed Phsych, & the early years inclusion service) which is not helping the poor mite.:rant::loopy::suspect:

I have been fighting for the poor man since he was 2 & am only just getting somewhere, problem is having to fight with GP's to listen, then SEN within the council for classroom help, the LEA to get him back into a school (none of the schools want to know!) & no-one will entertain us until he has a 'label' & diagnosis, this is more frustration for me especially as ryegates MDA dept CLOSES for the 6 week holidays (WHAT'S THAT ALL ABOUT!!!):rant::huh::rant:

anyway the appt for his MDA is on the 16 sept, wish me luck!!

I completely identify with what you are saying .My son was eventually sent to Ryegate when he was 11.
He has epilepsy, dyspraxia and is on the autistic spectrum.The ed psych who diagnosed him seemed to lack an understanding of how he behaves at home and could not see that he so many problems as we know he had and still does now, though he is 18 and just managing to hold on to his job but he is struggling with relationships and life in general.

There is light at the end of the tunnel.Getting the diagnosis is just the start.When you have that the real battle begins.


Come along to the Autism Alliance meetings if you want and PM me if you need any other help.