View Full Version : Kidney cancer I need help
anniec24 21-02-2008, 23:39 :confused: I am in a position because a close loved one has been diagnosed with kidney cancer. They have lesions on the liver and lung. I am aware the prognosis is not favourable but is there anyone out there who can let me know what happens
Hi there,
First of all, I'm sorry to hear this. This sort of news about a loved one is always scarey; there's support here, and amongst the people caring for youir loved one.
I think that you'll find that there are support nurses available at the Hospital who may be able to help explain the situation to close family, and also it is always worth talking to your loved one's specialist.
Don't go scouring the Internet - you'll read stuff that will curl your ears and turn your hair white - and you'll ALWAYS assume the worst from what you read.
The best person to talk to at thsi time for information about the illness is your loved one's medical adviser or a support nurse.
And look after yourself - you need to remember that things are always more scarey when you're hungry and tired.
Take care and the very best of luck to you both.
I'm so sorry to hear about the fight that your loved one now has to face anniec24. I think that the best people to talk to are Macmillan or their hospital team. They'll be able to spend the time helping you to understand what's likely to happen now.
I can't draw analogies with my situation because the tumour cells were completely different in my case. I'm sure that others will feel the same because even with people who have exactly the same sort of tumour the process can be quite different because of individual circumstances.
Wishing your family the love and strength that you'll need to support each other through this.
Plain Talker 21-02-2008, 23:53 MY father had this about three years ago, and my ex mother in law also came down with it, a few months later.
YMMV * in their cases, they both needed the kidney removing, due to the tumour, which was done, quickly and simply, using the laparoscope ('keyhole' surgery) and they made a good recovery, and are both pretty much back to their usual selves.
Yes, it "knocked their duck off" a bit for a while, as they recovered after the surgery, but they are both doing ok, now.
if the tumour has spread, it's not all bleak, there are options, such as chemo, and radiotherapies.
The specialist dealing with your relative's case will be best placed to answer the more specific questions about your loved-one's own case.
(*YMMV- your mileage may vary!)
SallyLaLaLa 22-02-2008, 00:02 Contact Macmillan Cancer Care or the Marie Curie Trust. They will be able to give you professional advise.
I'm really sorry to hear about your situation, anniec.
One resource I can recommend is cancerbackup - originally set up by a Doctor who herself had cancer.
The website has a lot of helpful information, and gives a phone number so that you can speak to someone there.
Unfortunately I can't post the full link because I have made less than 5 posts, but if you paste:
cancerbackup.org.uk
into your browser that should take you there.
I'm really sorry to hear about your situation, anniec.
One resource I can recommend is cancerbackup - originally set up by a Doctor who herself had cancer.
The website has a lot of helpful information, and gives a phone number so that you can speak to someone there.
Unfortunately I can't post the full link because I have made less than 5 posts, but if you paste:
cancerbackup.org.uk
into your browser that should take you there.
Can thoroughly recommend the cancerbacup site.
You'll be able to speak to a nurse who will answer your questions.
They are very helpful and the site is very informative too.
www.cancerbacup.org.uk
Anniec,
I'm very sorry to hear this. I hope whoever it is makes a full recovery quickly. x
A good friend of mine's wife was diagnosed with having cancer of the blood about 7 years ago and was told that she only had a couple of years left which was obviously terrible news. Since then, she had chemo and a new type of drug they were testing at the time and it seems to have worked wonders! After needing surgery on her liver and kidneys all those years ago, she's as fit as a fiddle now. The liver repairs itself, its an organ that can grow back apparently after surgery.
Best wishes.
CHAIRBOY 22-02-2008, 10:30 "The Cavendish Centre is a Sheffield based organisation that provides support to those affected by life-threatening disease. It does not provide clinical ..." - Google
The Cavendish Centre is on Wilkinson Street tel; 2784600 and they will be able to tell you more about what to expect and advice in how to cope etc.
"The Cavendish Centre is a Sheffield based organisation that provides support to those affected by life-threatening disease. It does not provide clinical ..." - Google
The Cavendish Centre is on Wilkinson Street tel; 2784600 and they will be able to tell you more about what to expect and advice in how to cope etc.
As will the Cancer Support and Information Centre which is behind Weston Park hospital. They will give advice on anything from medical procedures to financial help and benefits.
http://www.cancersupportcentre.co.uk/
Kidney Cancer Uk is another very useful website-but dont read too much on the web else you can panic yourself even more!
Have had kidney cancer myself and luckily one year on am here and about back to normal.
"The Cavendish Centre is a Sheffield based organisation that provides support to those affected by life-threatening disease. It does not provide clinical ..." - Google
The Cavendish Centre is on Wilkinson Street tel; 2784600 and they will be able to tell you more about what to expect and advice in how to cope etc.
The Cavendish stay away from the clinical aspects completely and instead concentrate on how the patient and their family are coping with things.
Believe me, it's a welcome relief to talk to someone who wants to listen, rather than tell you something unpleasant and frightening.
I credit the lovely people at the Cavendish for the reason that I'm still a vaguely human person at the end of my 10 years of treatment, but they will only offer support to those affected, not go into any sort of clinical discussion.
My Dad Had His Kidney Removed Because Of Cancer He Went On To Live For A Long Time Afterwards Please Dont Be Negative. But Be Sure You Make The Most Of Every Moment You Spend Together My Thoughts Are With You
anniec24 09-09-2008, 22:43 I posted this back in Feb, my Dad was diagnosed with kidney cancer with metastasis to the lung and liver!! whilst I am grateful for your replies it took till june this year to get treatment funded (north yorkshire PCT- not the best). He has now had 2 courses of sutent and it was working well in reducing the tumours. Sadly my dad has been suffering from atrial fibrilation for many years and the sutent seems to have exacerbated this, now his thyroid hs packed up too, though recently this has been regulated but the oncologist is now saying if he has any more sutent his heart may be too weak to take it. My dad is a strong bloke and I love him alot, I specialise in orthopeadics and in a different trust so I get no answers!!!! I would really like some though!!! He is now having ascites, it is 13 litres drained a week, I realise this is not a good sign but I need medical advice, I don't get it but I know that other Medics out ther will give me their truthful opinion!! Please give me some answers whether you are a fellow health prof, a patient o a carer.
Thank you
Anniec24
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