View Full Version : Very sad story, couldn't get it out of my head.


cosywolf
13-01-2008, 22:21
Hi all,
Maybe it's the time of year, leading us to look back and think about things that have happened in the past. I don't know, but this has been in my mind often recently for no reason I can think of, and I finally thought maybe I should share it. Maybe it just deserves to be told.

If you are feeling low, are pregnant and emotional, you might want to pass on this, it doesn't have a happy ending.
So why am i writing it at all? I guess I am just starting to let myself think about it, and this couple's incredible bravery should be known.

When I was pregnant, I spent a lot of time on Bounty, which some of you will know is a website where you can join a community of people who are due in the same month as you. It was supportive, and helpful, and fun. It was also a snapshot of pregnancy across the country, and as you unfortunately have to expect, there were some sad events, and a very few of the women lost their babies. It was particularly hard to read these posts - not, if you were honest with yourself, just because you knew them and felt for them, though of course you did, but because that could as easily have been you. And when you are pregnant, your greatest fear is losing the baby. I found it almost impossible to watch, read or hear about anything bad happening to babies, pathologically so, probably, but I doubt I'm alone in that.

One rather different story, the one that has stayed with me, haunted me, really, when I have forgotten the details of the rest, is this: one couple on the site were, as you would expect, very excited about being pregnant. But quite early on - first or second scan, I believe, they found out this terrible news...there was something wrong with their baby. She wasn't going to miscarry, she wasn't going to be stillborn, she may have had some problems that would lead to disability after birth, but that ceased to matter. What they discovered was that they could carry that baby to term, but she would not be able to live outside the womb for more than a few minutes, maybe hours. Simply would not.

They were offered a termination, but the couple said no. They said they wanted to give her as much of a life as they could. They carried that baby through the entire pregnancy, named her, came on and spoke about the pregnancy ocassionally and how the baby was, and loved her, so clearly loved her with all their heart and soul. Always knowing that they would only ever be able to hold her for such a short time. I just wish I could tell you that some miracle happened, but it didn't.

At the time I found it so hard to read her posts. I was so absolutely gutted for her, and so terrified for myself and my baby. But recently I've been thinking about her, and how she and her husband were so strong and compassionate, and how they made the decision to carry that child all the way to the end, always knowing she wouldn't survive outside the womb. I wonder if I would have that kind of strength and love. And sometimes in my darker hours I wonder if it was strength and love or an odd kind of selfishness.

Anyway, now i have shared what's been going round my mind; and I hope it hasn't traumatised anyone (I did warn you), and that someone can take something positive from it.

pinklady
13-01-2008, 22:34
thats really sad, as for it being selfish or love? ... its what they wanted, it was obviously what they needed to get through it, so does it really matter? Hopefully they'll go on to have a happy healthy family, i know one child cant replace another, but they do fill a huge hole.

mrseggy
13-01-2008, 22:46
Cosywolf,

I can underdstand just how hard this most be for you, my cousin lost there daughter when she was just a couple of minutes old. It was expected but they had been told that ther was a small chance that she would survive.

I suppose from there piont of view, if you try to look at it in the way that its better to have loved and lost. At least they got to meet there little angel if only for a short time, im sure that they will get comfort from that.

The thing is you read so many storys where babies have lived to prove a whole bunch of professional wrong. Maybe they hoped that this would be the case for their little girl.

My eldest (5) daughter has Aspergers so i also post on alot of other parenting websites, and some of the other parents i speak to have children that have been through so much its actually hard to beleive that these parent manage to hold it together.

Have you kept intouch with the parents? Maybe hearing about how they are now would help ?

Sorry if this isnt much help to you i just didnt want to read this and not post.

hennypenny
13-01-2008, 22:49
It is amazing how we can get really close to people who are strangers to us, and get enmeshed in their lives. I think it makes us better people to share others joys and griefs.

There is a couple I know virtually. I have known them for a few years now, the father was researching home education for his PhD and my posts amongst others made him decide to home educate his own children when they came along. A few years later they had a couple of children and then they had a tragedy, a baby who didn't make it beyond the first few hours, which is why your story reminded me. They went on to have another baby, but again the story doesn't end happily. This lovely couple who have shared their lives with hundreds of us, and who have been constant, loving and caring through their own problems, with their new baby only 6 weeks old, have just discovered (on New years eve) that the mother has an aggressive breast cancer and it has spread to her bones.

She has had to stop breastfeeding her new baby and is starting chemotherapy tomorrow.

This is the latest message from the father - he asked us to spread it to anyone who may want to help:-

> I am asking a favour from you all.
>
> Can you circulate the following message to anyone else you think
> might be interested.
>
> As some of you may know Lynsey (my Wife) was diagnosed with Breast
> Cancer on 31st Dec and we have since found that the cancer has
> spread to her spine.
>
> She begins aggressive chemotherapy on Monday 14th Jan.
>
> We are asking that those who feel able to, regardless of religion
> or belief to join us in a 'group' prayer / meditation / blessing /
> positive vibes / absent healing etc on Friday 18th Jan between
> 1-3pm. We have a large collection of people doing this and thought
> it would be a good idea if people could do this 'virtually' too at
> the same time.
> Love and Light


Maybe some here may want to join in on Friday, sending love and healing to Lynsey.

cosywolf
13-01-2008, 22:58
Thanks, mrseggy, but I don't think i can claim to be feeling in need of sympathy myself. I'm just...thinking, and remembering, and mulling things over, I guess.

And because it was such a...I don't know, huge emotional thing, so full of sadness and love, I decided to share it...perhaps there is a great deal in there worth thinking about.

I admit to being selfish, I didn't keep up with this couple, I couldn't face it at the time, it was so terribly poignant and painful. I like to think they went on to have healthy children, and I hope they are happy.

Sometimes it is just something to know that no matter what happens, if you have to be strong - and so many do - you can.
Or to put your own problems in perspective and remind you to be grateful for the good things.

In other words, I am having a midwinter ponder...:)

cosywolf
13-01-2008, 23:00
Oh, hennypenny, that is so heartbreaking...I will be thinking positive things for her, in the hope that she makes a recovery.

AstroKath
14-01-2008, 12:05
But recently I've been thinking about her, and how she and her husband were so strong and compassionate, and how they made the decision to carry that child all the way to the end, always knowing she wouldn't survive outside the womb. I wonder if I would have that kind of strength and love. And sometimes in my darker hours I wonder if it was strength and love or an odd kind of selfishness.

I've lost two babies in the last year. I loved them both to bits, and would have given anything to have been able to meet them, or even to have held them alive within me for longer. What that couple did makes perfect sense to me.

honeyb35
14-01-2008, 13:53
my best friend found out at 6m pregnant that the boy she was carrying had severe spina bifida. She wasn't given an option of what to do (this was 14 years ago) and had to terminate the pregnancy. She says she wishes she could have carried him to full term, even knowing what would happen soon after birth.
Me though, I've no idea what I would do in that situation, I cant even begin to contemplate it.

*Peaches*
15-01-2008, 08:52
I don't think I could ever make a decision like that, to carry on or to kill my baby. I don't think I'd ever be strong enough, my heart goes out to those people