shaggydog333
18-09-2007, 01:23 PM
does anybody know of any usefull forums or sites i could go to get info about this disability since my kid has it it would be really usefull if anybody could give info about wat i can do best for my kid
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View Full Version : Information needed re: cerebal palsy shaggydog333 18-09-2007, 01:23 PM does anybody know of any usefull forums or sites i could go to get info about this disability since my kid has it it would be really usefull if anybody could give info about wat i can do best for my kid green-veggie 18-09-2007, 05:07 PM Hi Shaggy, My daughter has CP too. There are various sites and groups around. This one is a good one. It seems to me there's a wealth knowledge held (and shared) by people who post here. But off the top of my head you could try: Scope. This is a national charity. They have a phone line too. http://www.scope.org.uk/ Sheffield Association for people with Cerebral Palsy. . This is a local charity. I am led to understand they now are only able to do limited young childrens work - purely due to lack of resources, not due a lack of willingness to do so. They seem to mainly work with young adults andFadults, doing sports, leisure and support stuff. Maybe worth checking out? http://www.sheffieldcp.org.uk/ There is also Contact a family http://www.cafamily.org.uk/ Hope this provides a good start for you. Good luck. And also I'm sure there are plenty of people here who would be more than happy to try and share their experiences. Plain Talker 18-09-2007, 05:07 PM Scope, the organisation that used to be known as the "Spastics Society" have branches all across the Yorks and Humberside region. If you go on Scope's website there is a freefone number for their helpline, where you can get info. I also know quite a few people with CP, who can give you first hand advice and info about what it's like to live with CP. edit to add OOH! Simulposted with green-veggie! :clap: mrseggy 18-09-2007, 07:09 PM does anybody know of any usefull forums or sites i could go to get info about this disability since my kid has it it would be really usefull if anybody could give info about wat i can do best for my kid Hi Shaggydog, This is a good forum if you want to chat with other parents in the same position. http://www.mumsnet.com/Talk/1373?off=0&tot=7830 Hope this helps. shaggydog333 18-09-2007, 10:58 PM thanks u all with ur help i will check them all out now 2001louise 19-09-2007, 10:12 AM my 6 year daughter has cp, so if you ever need someone to talk to, just pm me. have you had a referral for a social worker from ryegate, they should be able to put you in touch with other profession who might be able to help you shaggydog333 19-09-2007, 09:12 PM they have hes sees all the propfesionals given to him but its better to know someone personly to see how life is goin on with difficulities with day to day life 2001louise 20-09-2007, 03:36 PM well if you need me give me a shout honeyb35 25-09-2007, 09:09 PM if you follow the link in my siggy theres a further link to the site for the Cerebral Palsy Physiotherapy Centre (CPPC), not sure if its of any interest but they run intensive physio sessions to help children with mobility problems, I'm currently fundraising for my son to attend there. The initial assessment is free if you do decide to go. The Paces Centre in High Green is similar, its a nursery and school, I'm not sure how old your child is? As mentioned before, Contact a family is good and as for Ryegate, do you see a physio, occupational therapist or nurse there? They may take your number or email address and pass it on to other parents of children with CP, I speak to a few parents there who's children have it. |