If you are suffering in pain and suspected as suffering from fibromyalgia and getting no help from your Doctor or the Hospital.
The Sheffield Fibromyalgia Self Help Group meet once per month to help and support fellow sufferers.
We have recently launched a new website to provide information and advice, visit our website at sheffieldfms.org.uk for more help.
The group is run by volunteers and self funded.

If you know of anyone who needs help and support, tell them to contact us via the website.

Alan
FMS Member

Hi Alan,

My sister in Manchester has fibromyalgia. Do you know of any good internet resources for her?

I've been seeing a Homeopath for Fibromyalgia treatment and am so much better than when I was on traditional medicines.:)

I found a chiropractor quite good for mine. I havent joined the self help group because I dont like focussing on my problems too much. I realise that for some people it will be helpful though.

i have fibromyalgia and have tried loads to help my symptoms but nothing seems to help
i have just heard about the perrin technique
has anybody had it
is it any good because i dont want to throw more mney away on more treatments that dont work

If you are suffering in pain and suspected as suffering from fibromyalgia and getting no help from your Doctor or the Hospital.
The Sheffield Fibromyalgia Self Help Group meet once per month to help and support fellow sufferers.
We have recently launched a new website to provide information and advice, visit our website at sheffieldfms.org.uk for more help.
The group is run by volunteers and self funded.

If you know of anyone who needs help and support, tell them to contact us via the website.

Alan
FMS Member

Hi

I suffer from fibromyalgia - it's a terrible condition. My GP did diagnose it actually after years of pain.

If you are suffering in pain and suspected as suffering from fibromyalgia and getting no help from your Doctor or the Hospital.
The Sheffield Fibromyalgia Self Help Group meet once per month to help and support fellow sufferers.
We have recently launched a new website to provide information and advice, visit our website at sheffieldfms.org.uk for more help.
The group is run by volunteers and self funded.

If you know of anyone who needs help and support, tell them to contact us via the website.

Alan
FMS Member

yes i did that, you dont mention the cost. there are meeting during the day for those who do not work, i do work and have this condition - i work full time! I want someone to explain to my family how hard this is for me.

i have fibromyalgia and have tried loads to help my symptoms but nothing seems to help
i have just heard about the perrin technique
has anybody had it
is it any good because i dont want to throw more mney away on more treatments that dont work

what is the perrin technique?

Just noticed this link from my monthly Carer's Magazine, it says it's a new resource http://www.fibromyalgia-support.net/

Hi Alan,

My sister in Manchester has fibromyalgia. Do you know of any good internet resources for her?

Hi
The main Fibromyalgia Association uk website is a good source of information and help.
Join the Forum there are many people who are willing to help and give good advice.
You may find someone closer to home who you can contact for support.

i have fibromyalgia and have tried loads to help my symptoms but nothing seems to help
i have just heard about the perrin technique
has anybody had it
is it any good because i dont want to throw more mney away on more treatments that dont work

Hi
The perrin technique is quite new and is based on toxins in the body. I feel that does have some relevance.
My chiropractor told me that my FMS is caused by toxins getting into my bloodstream therefore affecting the muscles, tendons etc.
In my case he said its all down to the food not been properly digested due to lack of enzymes and poor modern day diet.
I have benefited from avoiding certain foods and drink and taking digestive enzymes. Other members of our group in Sheffield and other parts of Britain have benefited from the Norah Wickerson combination approach, which basically involves changing your diet.
I personally don't think the perrin technique on its own would work, unless you changed your diet.

my friend as fibromyalgia and now as been referred to a specialist i think it's a endocrinologist is this normal for this condition

I have had fibromyalgia for the past year(diagnosed) probably 10 years before that and to be honest at this moment in time feel like throwing the towel in. I am still working 32 hours a week, my doc seems to think that this is good for me, my hubby seems to think there is nothing wrong with me despite being in severe pain for large parts of every day and being virtually unable to sleep at night.
I tackled my doctor about this problem, I am thinking of trying for sick retirement from work (I am 53), he said he would not support a sick retirement from fibromyalgia as it is not a life threatening complaint and may go away eventually. I beg to differ, it is life threatening when people can get so low because no one understands.
Sorry a rant with tears in my eyes!

Hi all,

I visited Norah Wickerson in Derby, she made a lot of sense and I tried her approach for quite a while. I perhaps didn't have quite the success others had (I spoke to a few people) but that was because of my commitment.

http://www.tacklingfibro.co.uk/

I have had fibromyalgia for the past year(diagnosed) probably 10 years before that and to be honest at this moment in time feel like throwing the towel in. I am still working 32 hours a week, my doc seems to think that this is good for me, my hubby seems to think there is nothing wrong with me despite being in severe pain for large parts of every day and being virtually unable to sleep at night.
I tackled my doctor about this problem, I am thinking of trying for sick retirement from work (I am 53), he said he would not support a sick retirement from fibromyalgia as it is not a life threatening complaint and may go away eventually. I beg to differ, it is life threatening when people can get so low because no one understands.
Sorry a rant with tears in my eyes!

If you can, pack work in. I had to and it was the best thing Ive ever done. But if your doctor wont support you for ill health retirement he probably wont give you sick notes for incapacity benefit. It might mean a radical lifestyle change.

I was diagnosed with Fibromyalgia in 1990, things are bad. I agree with what the posters have said on here, l just have had to learn to live with it.

Decided to change docs within the practice and went to see the chosen one last night, what a difference, this doc has more sympathy with the complaint and is more willing to try and help me manage it rather than just saying 'get on with it'
So things a little sunnier today, all we ask is to be listened to isnt it!

I have worked through out this curse, but have been away from work for a while as it has been really really bad. I asked my doctor about the perrin technique and he said i could try it but he was dismissive due to the nature of the condition. What annoys me is that I can no longer work, I try to explain again and again and they say well I know how you feel. I have tried amitryptiline when I go to bed.. as advised but it does not help.

Hi all,

I visited Norah Wickerson in Derby, she made a lot of sense and I tried her approach for quite a while. I perhaps didn't have quite the success others had (I spoke to a few people) but that was because of my commitment.

http://www.tacklingfibro.co.uk/

Anyone suffering from this condition would benefit from changing their diet as recommended by Nora Wickerson. I have personally benefited by changing my diet and its stabilised my condition but I have lost two and half stone in weight.
You need to be on the diet and stick to it rigidly for a least two months! Anyone who finds it hard to stick to the diet would benefit from taking digestive enzymes.

A poem about my experiences suffering from FMS For anyone who likes poetry,

Fibromyalgia

My minds all gone foggy, am I going insane?
No! I’m lost in a maze wracked with pain.
I’ve visited my Doctor, who shows no concern,
And now I don’t know which way to turn.

This debilitating pain is affecting my life,
Unable to work and causing me strife.
No one seems to understand how I feel,
Suffering from an illness they say isn’t real.

Painful symptoms causing me so much stress,
Are the reasons why my life’s in a mess.
Sleepless nights, I struggle to get out of bed
All doctors keep saying it’s all in your head.

I wish I could get better and grow a little stronger,
For, I can’t stand this pressure pain very much longer.
This endless suffering is weakening my resistance
And my life’s no longer an easy existence.

Winter is on its way and days are getting colder,
I’ve got problems in my arms, legs, back and shoulder.
Unrelenting suffering, I struggle along in vain,
Pulsating, throbbing and penetrating pain.

To my doctor I’ve also honestly confessed,
To suffering fatigue, anxiety and being depressed.
And all they say is that there’s nothing to fear,
But life’s not easy, living with Fibromyalgia.

Life is not easy at the moment, Fighting a legal battle with my employer and their insurance company! They wont pay me my legal entitlement of sick pay!
Even though I have been diagnosed with FMS by two specialist consultants, occupational health therapist and a Chiropractor, the company have said I am faking my illness and being dishonest about my health claims.
BEWARE! Anyone suffering from this condition and is covered with a long term sick scheme with their employer who uses UNUM PROVIDENT INSURANCE! This company will use underhand tactics to refuse paying you your entitlement. They will demean and defame your character and make false allegations about you.

If you would like help or advice regarding FMS and fighting for justice! Don't hesitate to PM me

Hi,
I was diagnosed in March this year after many years of
pain and going back and forward to the Doctors

Is it a stress related disease

Is it a stress related disease

No, it's not, but stress could enhance the negative aspects considerably.

I only asked because my boss was suffering from stress and developed the symptoms. Does this condition mainly effect woman?

Fibromyalgia seems to go hand in hand with ME

There are a lot of related symptoms and overlap between the two, and some people think one is part of the other, or even the same thing.

I mention this because ME is now recognised by the World Health Organisation as a bona fide illness, which means it has to be taken seriously by doctors and government funding made available for research and treatment.

It's a very political issue as the government has spent many years denying it exists (and possibly responsible for putting out anti ME propoganda) for obvious reasons - it's going to cost them money.

I just read the poem further up this thread with tears in my eyes.

My friend once asked me what it feels like to suffer from Fibro, the only thing I could say was that it felt like your body is trying to punish you....... only someone who has suffered from this hellish condition truely knows what it feels like, no matter how well you describe it.