View Full Version : Help. Disabled Mom struggling looking after child
I know there's quite a few people on here who have a lot of different knowledge and experience so i'm hoping I might be able to get some help and/or advice please?
I'm in the process of trying to sort out some child care and if I do that, it'll certainly help a lot. But, as a disabled mom i've struggled but i'm now getting to the point where i'm finding it almost impossible to manage.
What concerns me most is the well-being of my little one and i'm acutely aware that if I could, I would be doing a lot more than I am doing. However, a part of me is very reluctant to raise my concerns with anyone 'official' because what would happen if someone decides that I can't actually care for my little one properly? I'm worried that I will be deemed a bad mother and little one considered 'at risk'.
Does anyone have any experience of this sort of thing?
I'm probably a bit over protective in some ways, I can't bear the though of little one being out of my sight, I even have a night light on constantly so that I can see him when he's asleep. This is probably sounding a bit mixed up, sorry. Basically I know I need help, I can't physically manage, but i'm frightened of being totally open and honest with my gp and health visitor. When I was talking to the lady on the phone who was filling the DLA form in for me I told her that I can't really say how bad things are because I have a young child and she said that they don't have anything to do with social services or anything like that, is that true?
happyhippy 16-07-2007, 02:08 I know there's quite a few people on here who have a lot of different knowledge and experience so i'm hoping I might be able to get some help and/or advice please?
Hi Bonny!
I'm in the process of trying to sort out some child care and if I do that, it'll certainly help a lot. But, as a disabled mom i've struggled but i'm now getting to the point where i'm finding it almost impossible to manage.
What concerns me most is the well-being of my little one and i'm acutely aware that if I could, I would be doing a lot more than I am doing. However, a part of me is very reluctant to raise my concerns with anyone 'official' because what would happen if someone decides that I can't actually care for my little one properly? I'm worried that I will be deemed a bad mother and little one considered 'at risk'.
Firstly, what is it you're doing, and how does it affect your ability to care for little one? Secondly, what would make you think that you weren't caring well for little one?
Does anyone have any experience of this sort of thing?
Pretty certain some will! How old is little one by the way?
I'm probably a bit over protective in some ways, I can't bear the though of little one being out of my sight, I even have a night light on constantly so that I can see him when he's asleep.
Thats not unusual; I'm still the same with my 14 year old as well as my 3 year old! You're just a parent; it's what we do!
This is probably sounding a bit mixed up, sorry. Basically I know I need help, I can't physically manage, but i'm frightened of being totally open and honest with my gp and health visitor. When I was talking to the lady on the phone who was filling the DLA form in for me I told her that I can't really say how bad things are because I have a young child and she said that they don't have anything to do with social services or anything like that, is that true?
Now we get to the bit you need to know about love. The DLA unit in Blackpool have nothing to do with Social Services at all, but if you feel that you're struggling, why not say here, in confidence, and maybe we can help.
In which way are you struggling?
barnsleybroker 16-07-2007, 09:33 Hi Bonny,
Hopefully you will find other people on the Forum in a similar situation to you. It may also be worth getting in touch with the Disabled Parents Network, who are excellent http://www.disabledparentsnetwork.org.uk/
I can understand your worries about social services, but there are disabled parents out there who get help from social services; in my experience, disabled parents and parents of disabled children (understandably) worry too much about the authorities deeming their child to be 'at risk'. Disabled parents are entitled to help from Sheffield social services if they experience, or will experience, substantial difficulties in carrying out or maintaining essential parent/family responsibilities Full eligibility criteria here http://www.sheffield.gov.uk/index.asp?pgid=47371, appendix A at the bottom.
Remember, if you did decide at any point to approach social services, it's adult services who should be dealing with you, not children's services, as it's you who is disabled, not your child.
Hi there, firstly, thanks for your replies.
Little one is just over a year old now. I find it very difficult to use my arms and legs - I lifted the pushchair out of the boot of the car in January of this year and hurt my right arm (elbow and wrist) and have struggled with it ever since. In order to help manage I bought a very light pushchair and I use my right arm as little as possible. Using my left arm has now resulted in the same sort of extreme pain in my elbow and made it really difficult to do a lot of basic things. So, lifting little one out of the cot for example means I have to hook my two upper arms under his armpits and lift him towards me so my body can take some of the strain while I put him on the floor. Some days it's taken every single ounce of strength I have to lift him.
How we work it at the moment is OH gets up for work and gets little one up, gives him his breakfast and changes his nappy then puts him on the bed with me - then OH goes off to work. So that's where we stay, he plays on the bed and I fall asleep, he usually falls asleep too after a while. Then around mid-day I mix a bottle for him (OH has puts a bottle of boiled water and a measured amount of milk powder out on the bedside table). On bad days, we don't leave the bedroom. On better days we make it to the living room and on really good days we've been out in the car. When OH gets home from work he takes over looking after little one and making the tea etc. Most days I don't get to eat or drink between OH going out in a morning and coming home in the evening. But I do have good days, and try to make the most of them by at least getting out of the house - that brings it's own problems but they're not relevant to this particular posting.
Little one is at that very clumsy stage as he's just started walking. He's had a few falls and lots of bumps and bruises. I know I should be making him a meal at lunchtime but most of the time I can't. He should be going to toddler groups and places like that but I can't get to them. I can't let him have run of more than one room at a time because I can't chase after him to see what he's doing so we generally are confined to either the bedroom or the living room and I keep a selection of toys in both rooms.
Changing his nappy is very difficult - just bending and leaning forward is painful and difficult. I took him to the baby clinic once - when he was 6 weeks old. Since then it's been the Health Visitor who comes out to me.
Before I had him, it didn't matter that I couldn't get out of bed a lot of the time but obviously now things are different. OH is reaching breaking point as he works quite long hours, because he can't stay away overnight, when he's working in other parts of the country he has to travel home and then leave again very early the next day. He also has to cook a meal when he gets in, takes over looking after little one including bathing him and putting him to bed. He also does all the housework and walks the dog. I worry about OH because I know he's finding it all very difficult and I can just see a major catastrophe on the horizon because I think everything is just going to fall apart. It feels as though we're managing but only by a very fine thread and the slightest thing could just be the last straw.
barnsleybroker 17-07-2007, 07:42 Hi Bonny,
It does sound like you are struggling. It would be worth pursuing that DLA claim, if you were thinking of using that to pay for childcare. You also have the option of trying to get help from social services, although I understand why parents in your situation are nervous about doing so. Help from social services can come in the form of a "direct payment", which is where they give you cash instead of services, and you can make your own arrangements with it. This can include getting support with parenting, and there is an example of that here http://www.dppi.org.uk/journal/52/viewpoint.html
It might be worth talking to the Disabled Parents Network about your worries in asking for help. They might be able to put you in touch with other people in a similar situation, and give you advice.
Hi there barnsleybroker, i've not heard of that 'direct payments' before so i'll look into it. I'll also contact the network too and let you know how I get on. Thanks again :)
barnsleybroker 18-07-2007, 07:24 Hi there barnsleybroker, i've not heard of that 'direct payments' before so i'll look into it. I'll also contact the network too and let you know how I get on. Thanks again :)
Hi Bonny,
I should clarify that to get a direct payment, you still need to have an assessment from social services, and they need to agree that you qualify for support from them. However, if you do qualify for support, they MUST offer you a direct payment as an option, and will direct you to an organisation that can help you set it up.
Good luck!
duckweed 19-07-2007, 19:07 Hi I am a disabled mother with chronic M.E and have had many of the problems you have. Firstly I am a big fan of Homestart. It is a purely voluntary organisation and can be very supportive. Secondly have plenty of safety gates and a large playpen. There are various kinds which can keep your child safe but which you will not have to lift your toddler in and out of. Not all nappies are the same. I used old fashioned terry nappies myself but with waterproof pants that fastened at the side so I didn't have to do a lot of lifting. An occupational therapist might be able to suggest somethings to make life easier. Your G.P. could refer you. I must admit car seats were my biggest problem. I've always used an electric scooter to get around. When my children were small I used a babysling. When they got older I used reins harness fastened to my belt when they were sitting on my lap on the scoota. Make meals up on your good days and freeze. Give your child a lot of finger food that he can feed himself. Make sure he has plenty of stimulating toys. Car boot sales and charity shops are great for these. Make sure you have a lot of clothes for changing so if you've been too tired to do the washing you still have clothes available, again car boots are great for extra clothing. My youngest is now 11. They are all healthy bright children and have not suffered from me being disabled if anything they have had the advantage of a mother being at home all the time. They have had closer physical contact as I didn't use pushchair so they weren't a distance away. Homestart could drive you to a suitable mother toddler group or just play with him while you take a break. All new mothers are anxious whether or not they are disabled. It's perfectly normal. Only poor mothers don't worry. I'm afraid parenting is one long worry but it's worth it.
Lindseyw 19-07-2007, 19:10 Bonny - we still need to have that chat. Do you fancy popping round one night ? Or even easier I'll come to you or come & get you x
Duckweed thank you so much for posting. It's heartening to know that other people have been through the same thing - and survived! LOL
I have a lady that comes from homestart once a week. I think policy must have changed a bit though because they're not insured to take us anywhere in their car. But, she's watched little one sometimes so that I could have a bath (I never, ever imagined just having a bath would be such a luxury)!
I'm the 'strong' one in the family. So I always have to push myself 100% particularly when OH is around as if i'm down, he tends to get down. So generally I put a 'front' up when he gets home from work - but it's probably taken me all day to work up to it! In that respect I have to be fairly self-sufficient. There's no-one for me to lean on. OH and little one rely on me.
Lindsey - yes please! I'll PM you.
duckweed 19-07-2007, 20:02 If Homestart won't drive you. How about dial a ride to take you? You would probably find after a couple of times someone would give you a lift. I'm a big fan of soft play areas as you leave the child in a safe enviroment to get tired while you sit and take it easy. She should be able to claim for a childcare component from the tax people if you are on tax credits. Taking a child to a childminder a couple of mornings could help. When he's older you will be able to take him to a playgroup. I think you need a homehelp. I actually employed a Mothers help myself as we were earning sufficient money. She came twice a week to clean the house and take my toddler to the Park. It means interviewing them yourself and checking references but you are in charge. Use internet shopping for your groceries or do one shop to Iceland and get them to deliver. There may be a shopping service in Sheffield. Someone else will probably know. Hire a baby sitter and get out with your husband even if its only to Pizza Hutt. Make sure your husband doesn't feel taken for granted. It's only now my oldest is 16 that we have a lot of possible free time. I used to get out very rarely but I never turned an offer of baby sitting down. I said to my children we were going out when the children were young and my oldest said "But you went out last year."
duckweed 19-07-2007, 22:13 A while ago I wrote the advantages of being a disabled parent. I can't remember them all but I'll try and remember them.
Because I'm disabled I never had to decide whether to work or stay at home so I had no guilt trips and my children feel secure because they know Mum will always be there when they get home from school.
Because I couldn't pick up my children easily, they learned to come for me for comfort, so they chose not me and they became more confident than other children.
Because I wasn't always busy doing housework or work my children and I got to talk more than in other families.
My children are more understanding and less judgemental of people who are different.
My husband and I have always had to work as a team. Tasks are allocated according to physical abillity not gender. The children see our relationship as a partnership and seem to get on well with both Genders.
Because I couldn't do Time out with the children because I couldn't physically do this I had to develop other strategies which became the Token system (giving points for good behaviour which resulted in prizes)
Because I couldn't use a pushchair my children were always in close physical contact which meant we could talk together and I could point out things to them consequently they learned shapes colours and letters and numbers earlier than many children. We have a very close relationship. Health Visitors and Teachers have commented on this. There are positives to being a disabled parent. I spent my first year as a mother feeling anxious half the time and guilty the rest. Social Workers and other professionals can make you feel inferior by underlining what you can't do but think what you can do. Children don't worry if they don't get bathed every night or their parents can't pick them up. If they want a hug they come to you. You are the most important person to them and love and attention is the most important thing they need.
Just spotted this thread, sounds like you're having a tough time at the moment.
I can recommend Sheffield Community Transport (I use it to get my wheelchaired ma in law around). Have a look at
http://www.sheffieldct.co.uk/Pages/CT%20Services.htm
The Community Car Scheme or City Ride might be able to help with getting you and little one around.
duckweed 24-07-2007, 15:51 Anybody know of an accessible parent toddler group too?
Plain Talker 24-07-2007, 17:48 Anybody know of an accessible parent toddler group too?
contact Zebra, through here, I kow that she runs a parents-and-tots group, in the city centre, and it is definitely in an accessible venue. (I know cos I have called in)
Yellowrose 29-07-2007, 17:06 Just come across this post.
Im a disabled parent caring for both a 4 and 1 year old. I get respite by sending them to day care nursery and I am able to claim a good percentage of this back through the working tax credit (child care) scheme. If your partner works and you are disabled you are entitled to help with child care. A visitor (relative) watches the kids a couple of times a week so I can get an afternoon nap. My husband does a lot of the difficult things like shopping, hoovering and ironing. I also have weekly chiropractic treatment which makes a big difference to my condition. I didnt achieve this all at once, its taken over a year to get this organised. Ive also got a referral for Homestart but I dont know if I will find them of use. I drive an automatic car which has helped a lot too (amazing the difference it makes) and always have a lightweight buggy in the boot. The infant car seat scenario was the most difficult and Im pleased to say now the little one has a normal child car seat and the oldest can fasten his own belt.
Is your health visitor any good? My original one helped a lot. In certain areas, because of your circumstances, you might be able to get an early (state) nursery place, part time of course, but it all makes a difference.
Get in touch if you think I can help.
I was going to suggest that you may be able to make an application to the Independent Living Fund managed by the Councils. It's for people who receive DLA etc so they continue to manage their lives at home. But from reading some of the stuff on their website and given what you've written about your entirely understandable reluctance to involve these guys in your life, perhaps it isnt an appropriate source of help. Anyhow the general information link is: www.direct.gov.uk/en/DisabledPeople/HomeAndHousingOptions/YourHome/DG_4019444
Application form link www.ilf.org.uk/making_an_application/help_for_new_applicants/index.html
Here's a link for disabled parents: www.disabledparentsnetwork.org.uk/
barnsleybroker 11-08-2007, 19:45 I was going to suggest that you may be able to make an application to the Independent Living Fund managed by the Councils. It's for people who receive DLA etc so they continue to manage their lives at home. But from reading some of the stuff on their website and given what you've written about your entirely understandable reluctance to involve these guys in your life, perhaps it isnt an appropriate source of help. Anyhow the general information link is: www.direct.gov.uk/en/DisabledPeople/HomeAndHousingOptions/YourHome/DG_4019444
Application form link www.ilf.org.uk/making_an_application/help_for_new_applicants/index.html
Here's a link for disabled parents: www.disabledparentsnetwork.org.uk/
You can only get Independent Living Fund if you already get at least £200 per week of assistance from social services, so you'd still have to go down the social services assessment route first.
You can only get Independent Living Fund if you already get at least £200 per week of assistance from social services, so you'd still have to go down the social services assessment route first.
Please note I did state "may" which is the operative word here because I can not presume to know the OPs benefits position and I simply suggested it as an avenue they may wish to explore and find out more information.
The thing I find strange is, if I was unable to look after little one properly because I was a druggy or an alchoholic for example, there's be all sorts of people and agencies providing support for me as they're main concern would be the welfare of little one - and quite rightly.
But because I am unable to look after him properly because I have a disability then it seems to be very much a case of just having to carry on and do my best. I am doing my very best but I know i'm failing him and that's the worst thing in the world.
I feel a total failure as a mother and so guilty because he deserves better.
barnsleybroker 17-08-2007, 07:50 The thing I find strange is, if I was unable to look after little one properly because I was a druggy or an alchoholic for example, there's be all sorts of people and agencies providing support for me as they're main concern would be the welfare of little one - and quite rightly.
But because I am unable to look after him properly because I have a disability then it seems to be very much a case of just having to carry on and do my best. I am doing my very best but I know i'm failing him and that's the worst thing in the world.
I feel a total failure as a mother and so guilty because he deserves better.
Bonny, you really shouldn't feel a failure. There are so many aspects to being a parent; the things you find difficult are only part of the equation. There are non-disabled parents out there who might not have any trouble changing a nappy, but who are mean to their kids and don't give them the love they need. Services will intervene with some parents who are dependent on alcohol/drugs without giving the parents the choice, because their kids would otherwise be at risk. This is not happening with you. You mention a health visitor who comes to see you - it seems to me that if they thought your child was at risk, they'd have done something about it by now.
That's not to say that you couldn't do with some support, which you clearly could. I really think it's worth you trying to contact a number of disabled parents who have approached their social services departments for help, whether that's through the Disabled Parents Network or another route. That might help you to decide whether you want to contact Sheffield Social Services about getting some help for yourself.
green-veggie 17-08-2007, 12:39 Bonny you are NOT a failure!!!
You are a mum of a beautiful little one.
I'm a severely disabled mum too. I really do know how hard it is. I have a 15 year old and a 4 year old who has CP. I get Direct Payments and Independent Living Fund (ILF - it's for those who get a min of £200 care per week from the Council and need more). With Direct Payments you can hours (ie: money) to help you parent. With ILF you can't.
I really want to spend time sharing my experiences of being a disabled parent, both negative and positive, including the different fears, worries and concerns I've had, and continue to have at times...and I will do at some point, but I wanted to tell you something much more important first...... You aren't alone at all.
There are many disabled parents who feel they're not good enough parents - and probably keep it to themselves or feel that they're being judged and their little one will be taken from them. There are many disbaled parents who feel guilty. It's HORRIBLE to have those feelings going round inside you. But I really believe there IS an answer to everything, and I'm definitely not one of those 100% poistive everyday people, honest!!! But I am an 'action' look for the options for solution, type of person.
Firstly, I live quite a long way from there, but my daughter goes to Grace Owen Nursery School. They are open 50 weeks a year, from 8am - 6pm and take children from 6 months to 5 years. Ofsted have given it Outstanding in every area!! Not that you need Ofsted to tell you that, once you visit, you can see what an amazing resource it is for yourself. To me 'Outstanding' is just a word to many of us parents (although well earned for Grace Owen, of course), the proof of the pudding is experiencing what they do, and how they do it. My daughter loves it there. And importantly, both her AND my needs are met. I am probably too disabled to work now, but the atmosphere, commitment and positive way of approaching every situation, - a 'can - do' approach, right from the start - means it's the only place I would want to work, if I could.
It may well be worth ringing them and having a chat Tel: 272 2541. Even if they can't help, or you don't feel it's right for your family situation, they know much more about what's around than most peole and might just have some info that's right for you. It could be that Jean the Headteacher, Mandy the Development worker, Carol the Administration worker or Shirley who's in charge of the under 3s, answers the phone. They are all very approachable, friendly and experienced.
I would really enjoy getting to know you and all the other disabled parents around here more - I'm looking forward to it! We could support each other and share experiences too. We are not alone. There are many disabled parents out there..... and I reckon many either had, or are, feeling similar things to what you describe.
barnsleybroker 17-08-2007, 12:52 Bonny you are NOT a failure!!!
You are a mum of a beautiful little one.
I'm a severely disabled mum too. I really do know how hard it is. I have a 15 year old and a 4 year old who has CP. I get Direct Payments and Independent Living Fund (ILF - it's for those who get a min of £200 care per week from the Council and need more). With Direct Payments you can hours (ie: money) to help you parent. With ILF you can't.
I really want to spend time sharing my experiences of being a disabled parent, both negative and positive, including the different fears, worries and concerns I've had, and continue to have at times...and I will do at some point, but I wanted to tell you something much more important first...... You aren't alone at all.
There are many disabled parents who feel they're not good enough parents - and probably keep it to themselves or feel that they're being judged and their little one will be taken from them. There are many disbaled parents who feel guilty. It's HORRIBLE to have those feelings going round inside you. But I really believe there IS an answer to everything, and I'm definitely not one of those 100% poistive everyday people, honest!!! But I am an 'action' look for the options for solution, type of person.
Firstly, I live quite a long way from there, but my daughter goes to Grace Owen Nursery School. They are open 50 weeks a year, from 8am - 6pm and take children from 6 months to 5 years. Ofsted have given it Outstanding in every area!! Not that you need Ofsted to tell you that, once you visit, you can see what an amazing resource it is for yourself. To me 'Outstanding' is just a word to many of us parents (although well earned for Grace Owen, of course), the proof of the pudding is experiencing what they do, and how they do it. My daughter loves it there. And importantly, both her AND my needs are met. I am probably too disabled to work now, but the atmosphere, commitment and positive way of approaching every situation, - a 'can - do' approach, right from the start - means it's the only place I would want to work, if I could.
It may well be worth ringing them and having a chat Tel: 272 2541. Even if they can't help, or you don't feel it's right for your family situation, they know much more about what's around than most peole and might just have some info that's right for you. It could be that Jean the Headteacher, Mandy the Development worker, Carol the Administration worker or Shirley who's in charge of the under 3s, answers the phone. They are all very approachable, friendly and experienced.
I would really enjoy getting to know you and all the other disabled parents around here more - I'm looking forward to it! We could support each other and share experiences too. We are not alone. There are many disabled parents out there..... and I reckon many either had, or are, feeling similar things to what you describe.
Green-veggie, can I ask how you found it when you contacted social services for help? Did you have the same worries as Bonny does about being judged an "unfit" mother and being dragged into child protection stuff? How did the social worker react to your situation? Were they supportive, or did you feel they were judging you? It would be really useful to know.
duckweed 17-08-2007, 20:54 Please believe that all parents disabled or otherwise have times when they find it difficult to cope. That's what parenting is like. My children are 11, 14 and nearly 17. I had a lot of trouble as a disabled parent and felt guilty many times but when I asked my children if they thought they had it harder than children who had able bodied parents, all they said was that they were annoyed that sometimes they had to leave me waiting outside because there was no disabled access. Your child is a toddler. That means you have already been successful as a parent of a baby. I found that the hardest part, as the older they get the more they can do for themselves. I wonder though whether you may have had postnatal depression on top of your disabillity. Do you think that could be a possibility? Untreated it can go on for a very long time. Its a great upheavel having a baby, disabled or able bodied.
green-veggie 20-08-2007, 19:04 Green-veggie, can I ask how you found it when you contacted social services for help? Did you have the same worries as Bonny does about being judged an "unfit" mother and being dragged into child protection stuff? How did the social worker react to your situation? Were they supportive, or did you feel they were judging you? It would be really useful to know.
Hi Barnsleybroker,
Sorry I didn't reply before, but I just haven't had a long enough moment to myself until now.
Can I ask how you found it when you contacted social services for help? I had just moved back to Sheffield and I rang them up. When I explained my situation I was given an apppointment within very few days. They couldn't believe I hadn't any help. The initial package of 31 hours per week was approved within 2 - 3 weeks and I then started recruiting.
Did you have the same worries as Bonny does about being judged an "unfit" mother and being dragged into child protection stuff?
Yes I did!!!! But I was determined to raise it with them and make sure they understood that I was very fearful of them and they would need to 'earn' my trust. (This didn't mean i was rude to them or anything like that). I had expereinced a VERY difficult time at the small town I'd lived at before for just 2 years. The caseworker from Scope who I contacted once my daughter was diagnosed with CP, said the town was back in the 60s and 70s as far as understanding and perspective on disability. It was a nightmare as a disabled single mother with 2 children, one with CP.
I told Sheffield Social Services my experience. I needed them to know why I had little confidence with social workers and professionals as a 'breed'. I wanteded them to know I was a capable woman with 'great' parenting skills - I just needed physical help to put them into practice. I wanted to show that, even though I was struggling and at the time had PTSD and depression (and I think it was important to be open about that), and that even within the restrictions caused by my impairments I, for example:
could manage my finances,
plan family life activities,
look at meeting all the needs in our lives ie: physical, emotional, spiritual, etc
plan healthy meals
try and have fun
have a proven record of assessing my children's needs and acting upon them, etc
ditto for myself too... I had orgainsed support and therapy for PTSD, until top of NHS list
The Social Worker wanted me to go through my day and week, which I did. I had already told her I would like Direct Payments as I knew the flexibility it offererd compared to other schemes was much better for family life.
How did the social worker react to your situation? I have to say that she was very gentle and positive. She made notes of my trust issues and it helped that she reassurred me that it was obvious I was doing my best and we were a very close family.
But it must be said that no social worker will guarantee they aren't going to take anyone's kids off them, if there are circumstances they believe where the kids are being neglected or abused, for example. But being a disabled parent are not circumstances leading to neglect and abuse per se. Perhaps more importantly, Direct Payments provision clearly states thats meeting disabled people's parenting needs is acceptable, and IMO, an ordinary need.
Were they supportive, or did you feel they were judging you?
Definitely supportive. Once I passed on from the 'access team' to my own Social Worker I went through all my fears again. But we talked about it and now, a couple of years on, when I bumped into her in town, she gave me a hug....which was fine.
Bonny and any other disabled parent........ go for it!!!! Direct Payments works for so many people. It's given me freedom. I now live instead of just exist. Even though I was terribly depresed and PND , PTSD too, it was OK. There is no shame in asking for support. And disability social workers are there to organise it!! The ones I've met, like to do it.
barnsleybroker 21-08-2007, 07:59 Thanks very much for that green-veggie. A lot of people feel quite powerless when dealing with large institutions like social services departments, but it sounds like you took control over your dealings with Sheffield - good on you!
green-veggie 21-08-2007, 11:13 Thanks very much for that green-veggie. A lot of people feel quite powerless when dealing with large institutions like social services departments, but it sounds like you took control over your dealings with Sheffield - good on you!
I felt quite powerless too, Barnsletbroker, but what I did was make sure in my head, that I saw them as partners with me, solving the problem together. And I prepared, on paper, as well as in my head.
The other thing I did, which I learnt through having so many different home visiting practitioners in my daughter's life, was open the door to greet them, with a smile on my face, saying, 'Welcome to our home, come in.' It may sound a little thing, but it gives a clear message of them being a welcome and invited guest, rather than someone coming to rescue us. KWIM?
I think it helps them see that I see disability as something that doesn't make me needy or helpless, or the other extreme, a hero. It just means I need practical support to get on with life.
duckweed 21-08-2007, 18:36 I think you have to spend some time on the positive, let the social worker see and play with the child. It will be quite obvious the child is well looked after. Talk about the problems you have solved. Then talk about the help you need.
green-veggie 21-08-2007, 18:39 I think you have to spend some time on the positive, let the social worker see and play with the child. It will be quite obvious the child is well looked after. Talk about the problems you have solved. Then talk about the help you need.
Very good advice.
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