Is there anyone else who's a parent of a disabled child, who wants to moan, rant, share worries, advice and happy news?
I did see something about a sheffield carers group, is there one on the forum, and are we welcome there?
Many thanks!

Is there anyone else who's a parent of a disabled child, who wants to moan, rant, share worries, advice and happy news?
I did see something about a sheffield carers group, is there one on the forum, and are we welcome there?
Many thanks!

Yes there is now, and here it is! Welcome!

yay! not sure if i have to introduce myself but basically i'm the mum / carer of an almost 3 year old boy who was left brain damaged after an illness when he was a baby. Its been nealy 2 1/2 years since then so i've picked up tips along the way but i still have a lot to learn so i'm sure i'll be begging for advice!

I'm sure you'll also be able to offer an ear and some advice to anyone else who finds themselves in your position honeyb- that's the whole point of this group.

I'm sure you'll also be able to offer an ear and some advice to anyone else who finds themselves in your position honeyb- that's the whole point of this group.

whoops yeah thats what i meant, pressed submit before reading it

i have a 6 year who has celebral palsy due to a illness when she was younger, if you need any help or info , maybe i can help or i will try

I am the parent of a disabled child.....only he has just celebrated his 28th birthday.....still my child!!!!

I don't know what sort of help you are looking for - parental, getting outside help, benefits......if I can help I will try.

And a big hello :wave: to your little'un. :D

I co- run a support group called ray of hope for parents and carers of children with special needs, we meet formally once a month every second tuesday at Eskdale community centre and we host a coffee morning on the 4th tuesday of every month same place. pm me for more info I will send out promotional details.
Next meeting is 11th of September 9.30 am onwards.

that sounds interesting but my sons therapy group is on a tuesday morning sob!

We also meet up informally at spacefunzone at hillsboro on a monday evening 6-8 pm the children can play in a relaxed atmosphere whilst adults drink too much coffee and put the world to rights . There is a charge of £3 per child.

I have a 4 year old girl with Cerebral Palsy and I'm also severely disabled and use a wheelchair. I'd love to get to know more parents. I'm sure we'll find many ways to share ideas and support each other as necessary.

i know theres another post about this but asking child specifically, does anyone recieve the free car tax for their disabled child? My son turned 3 on sunday and is now entitled to it apparently (although my car doesnt need taxing just yet) but you can only have it if your car is used specifically for your child cant you? I was just wondering whether its worth it as although my son is in the car 90% of the time I do use it occasionally without him? Would they not let me have it?

i know theres another post about this but asking child specifically, does anyone recieve the free car tax for their disabled child? My son turned 3 on sunday and is now entitled to it apparently (although my car doesnt need taxing just yet) but you can only have it if your car is used specifically for your child cant you? I was just wondering whether its worth it as although my son is in the car 90% of the time I do use it occasionally without him? Would they not let me have it?


Hi there, If I'm correct, you have to receive the higher mobility component of DLA, which you can claim once your child is three to get the free car tax thing. You probably already know you can claim for the care component before they are three. I got my daughter's about a month or two after she was diagnosed when she was 10 months old.

Hi there, If I'm correct, you have to receive the higher mobility component of DLA, which you can claim once your child is three to get the free car tax thing. You probably already know you can claim for the care component before they are three. I got my daughter's about a month or two after she was diagnosed when she was 10 months old.

Hi, yes he's entitled to both parts of DLA at higher rate, he's just started getting the mobility one. He's had the care componant since he was about 10 - 11 months too. It was just the tax thing, he's getting a wheelchair which means I had to get a bigger car so it fits in, naturally that means a bigger engine so a higher tax bracket grr. I just dont want to apply for the free tax only to get penalised later cos shock horror I've done the food shop whilst he was at nursery!

I just dont want to apply for the free tax only to get penalised later cos shock horror I've done the food shop whilst he was at nursery!

I know what you mean but I'm sure you won't!

Now if you were to use his blue badge when he wasn't there, that's another issue altogether! You can be fined for doing that and the badge can be withdrawn!

I know what you mean but I'm sure you won't!

Now if you were to use his blue badge when he wasn't there, that's another issue altogether! You can be fined for doing that and the badge can be withdrawn!

yeah i know, i wouldnt do that anyway, its hard enough to park without nicking the disabled places when they arent needed!
I guess I'll just apply for the tax later and if theres an issue I'll have to wing it, I suppose doing the food shopping is classed as nessecary for him! He has to eat!

He has to eat!

I'm sure some jobs worth somewhere could put a case up against that!!!!

I'm sure some jobs worth somewhere could put a case up against that!!!!

no doubt........:roll: lol

is there a age or height restriction for this?
roughly what age are the children who attend?
my son is 11.5 and has asperger syndrome and other diffs.
thanks


We also meet up informally at spacefunzone at hillsboro on a monday evening 6-8 pm the children can play in a relaxed atmosphere whilst adults drink too much coffee and put the world to rights . There is a charge of £3 per child.

I'm not one who would usually disclose much info about myself on the internet but seeing theres a place my experiences could be shared with others and maybe even help people in simliar circumstances, why not hehe :P

I have a daughter who was born with Spina bifida and hydrocephelous, developed trachil malasia so now has a tracheostomy in place. Shes now 1 and doing great, most of her doctors (trust me theres doctors by the bucket loads) are all pleased with her progress. Obviously she needs full time care and i realise at times this is very exaustive so if theres anyone who wants to maybe chat with me about that in similiar circumstances, well im here :)

I'm not one who would usually disclose much info about myself on the internet but seeing theres a place my experiences could be shared with others and maybe even help people in simliar circumstances, why not hehe :P

I have a daughter who was born with Spina bifida and hydrocephelous, developed trachil malasia so now has a tracheostomy in place. Shes now 1 and doing great, most of her doctors (trust me theres doctors by the bucket loads) are all pleased with her progress. Obviously she needs full time care and i realise at times this is very exaustive so if theres anyone who wants to maybe chat with me about that in similiar circumstances, well im here :)

Welcome. I think it's great that there is somewhere that parents can contact other parents with similar problems. This doesn't affect me, personally, but I suffer from depression and I know how helpful it can be to talk to other people with similar problems.

I'm not one who would usually disclose much info about myself on the internet but seeing theres a place my experiences could be shared with others and maybe even help people in simliar circumstances, why not hehe :P

I have a daughter who was born with Spina bifida and hydrocephelous, developed trachil malasia so now has a tracheostomy in place. Shes now 1 and doing great, most of her doctors (trust me theres doctors by the bucket loads) are all pleased with her progress. Obviously she needs full time care and i realise at times this is very exaustive so if theres anyone who wants to maybe chat with me about that in similiar circumstances, well im here :)

Hi! My neice has hydrocephelous, they dont live in sheffield but I'm sure her mum would like to chat via email for mutual support ect if you're interested?

Hi! My neice has hydrocephelous, they dont live in sheffield but I'm sure her mum would like to chat via email for mutual support ect if you're interested?

Sure, has she just being diagnosed or an older child? My daughter actaully has a lot of brain damage from the hydrocephelous being present during fetal growth so if i can help my email is on my profile. :)

is there a age or height restriction for this?
roughly what age are the children who attend?
my son is 11.5 and has asperger syndrome and other diffs.
thanks

There is no limit on this night all that is asked is that the older bigger kids do not play in the toddler area .